But it’s just arthritis… Yeah… Right…

The “just arthritis” that people talk about when they impart their wisdom on those of us who have courage enough to admit to having RA (or one of the other ‘flavors’ of autoimmune arthritis) is usually osteoarthritis.

The comments are usually something along the lines of…

If you would just lose weight you would probably feel better
Exercise helps everything
Have you tried Gluten Free
Oh, yeah, I have that too in my left knee.  I hate when it rains.
Oh, my grandma had that, but she was fine if she took a couple aspirin
You’ll be fine.  It might hurt but no one ever died from having a little arthritis.

I’m never really sure how to feel about the comments, because I am an odd person who tries hard to believe that most people are well meaning when they make these kinds of comments.  I try to not think they are being deliberately mean or uncaring.  I try to understand that they probably don’t understand.

What bothers me most are the people who, when you try to explain to them that I’m not just fat and lazy, I’ve been tested for gluten sensitivity (and every freaking other thing under the sun) and I’m actually finished three half marathons since my diagnosis.

I know that, after my half marathons,  my body gets a little ticked at me from the stress I put it through.  My joints swell, and I get what feels almost like the flu for two days.  I know people mean well by telling me what is probably wrong with me (and I completely understand that there are SO many things that can be wrong with me), but I know my body.  And I know my doctor.  And I know my test results.

I have shoes in three different sizes.  So I can be decently comfortable no matter how fluffy my feet joints are.  I have wool socks so I can make my feet warm no matter what the weather…. ones for my regular shoes and ones for my Hobbit Feet shoes.

My fingers hurt… in the joints and in the knuckle bumps (hello… knuckle bumps).

My toes hurt.

My ankles hurt and my knees hurt

Not all the time, but usually bilaterally, and when I flare, they swell to nearly twice their normal size.

I have to take infusions every month.  Infusions don’t do anything for “just arthritis  and I certainly wouldn’t spend $2500 a month for something that wasn’t going to be working at all anyway.  And it does (for which I’m very happy).

My hair is thin (I can hold it in an entire hairstyle with one bobbypin) because I’m on chemo drugs and I will be forever.  Chemo drugs do nothing for osteoarthritis.  When I tried by wean off of my chemo drugs, my body got so pissed at me I had to go back to the old dose and add in some extra meds.

I know that I can’t touch elevator buttons, pop cans from a machine, or doorknobs without thinking.

I have to hum happy birthday twice when I wash my hands after I use the bathroom.

I have to carry Clorox wipes with me.

I have to THINK about whether I can deal with buttons and jeans today or if I need to resort to elastic pants and pull over shirts (usually sweats and a t-shirt).

My primary care physician doesn’t even actually bother with diagnosis any more.  If I call with a problem that I’ve had before (and I’ve had many) she just calls in whatever it is I had last if it worked.  I’ve been her patient for nine years.  My record was three inches thick by the time they went full digital.

I think, though, that the bumps are the scariest.  “Just Arthritis” doesn’t come with fancy nodules that grow on your knuckles.  I have them.  I don’t yet have enough joint damage that my fingers lock in any one position or that twist and turn back on themselves.  I can still see the hands of my great great great (something like that) aunt that we used to visit who wasn’t as lucky as I am.

I fight every day to maintain where I am and to scratch a few inches back to where I used to be.

It isn’t the worst think that could happen to me.  I understand that.  But it certainly isn’t “JUST” anything, let alone Just Arthritis.

14 responses to “But it’s just arthritis… Yeah… Right…

  1. Thank you

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  2. alicorndreams

    I’m always willing to rant, especially if there is a way to set the message straight in the process! It’s kind of a sore spot… :)

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  3. I don’t know how many times I have hear “It’s just arthritis…” If I hadn’t had a girlfriend at work with Lupus, my co-workers wouldn’t have understood as well as they did when I told them that RA is an autoimmune condition. But even then, they still didn’t understand as well as they could have.

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    • alicorndreams

      I think it is very hard for people to understand until they HAVE to understand. I “understood” about epilepsy, but it wasn’t until I watched my baby girl in a tonic clonic seizure at the bottom of the steps that I UNDERSTOOD. I try to bring it to the most common denominator but unless someone really understands, they can really only try to empathize.

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  4. Pingback: WAAD Blog Carnival #2: “But It’s Just Arthritis” | Systemically Connected

  5. No one undestands how it is like living with the arthritis pain. When you’ve got to do the usual daily work while living with pain, it is like trauma. I went through a stem cell therapy for my knee pains from my orthopedic surgeon Dr. Purita and he was very supportive and more than ever he was ready to listen to my pains. I guess that way he learnt exactly where I was having my pains and treated accurately. His treatment worked for me and I am glad I went to him.

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    • alicorndreams

      Sometimes it really helps to find a doctor who has been through something even vaguely similar to what you are going through. They seem more able to understand and relate to you rather than just blowing you off and acting like it is all in your head.
      I’m really glad you found someone who understands! No one quite grasps how valuable that understanding can be, if only to your spirits!

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  6. I can absolutely relate — except to you’re being able to run the half-marathon. My joints have been ravaged by disease to the point that so much exercise isn’t an option.Good for you, that you can keep on (at a price).

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  7. Hello, this is the first time I have ever visited your blog, so I wanted to leave a comment for you. First off, I wanted to say congrats on creating such a great blog, my girlfriend is starting her own and it certainly takes some time and effort! However, I will admit that I had another purpose for leaving this comment today. Last month was Arthritis Awareness Month, and I helped to put together an infographic in honor of this widespread event. While I tried to share it with as many people as possible over the course of May, there were of inevitably many that I was just not able to reach during the month. So, I figured that it wouldn’t hurt to reach out to some more people this month, because spreading awareness for the many forms of arthritis is a crucial undertaking that requires a little more time. If you are interested then I invite you to check out my arthritis awareness infographic and share it with others! The infographic is visible at: http://www.availclinical.com/news/raising-awareness-for-arthritis/

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  8. Just like, I also had problems with my knees, feet, and hips’ joints, which were cured through stem cell treatment by Dr Purita. True to what she said, the doctor is very supportive and well-experienced. I had a 5-week therapy with him and it was successful. I’ve been joint-pain free for the last 5 years despite the fact that I have been increasing my running goals. I am keeping my fingers crossed that the beneficial effect will last years and years more. I wish you all well. :)

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