So… today was my rheumy appointment. I was TOTALLY not looking forward to this appointment. The last couple hadn’t been stellar and I was worrying myself about half sick over what she might say. I know what my next steps are and I really really didn’t want to hear them.
Got there and went right into the office (going RIGHT after lunch is a good thing). I didn’t get weighed. I didn’t have my BP taken or my temp or my pulse. That was really creepy. When Sean was there I always always always had vitals. I don’t even know that Dr Booth cared so much, it was just what we did. Today, nothing. Great. I actually wanted validation that my weight is down.
So, I kicked off my hobbit feet and my rainbow toe socks and tucked my feet under my legs to try to keep my tootsies warm. It didn’t work. “Yay” Raynauds… :0(
Dr Booth came in and we chatted and she poked and prodded. Then we chatted some more. Turns out she was anticipating my going on the IV drugs in the VERY NEAR future. I was instantly petrified. Tied to the doctor’s office for the rest of my life.
But… looks like I’m down to three involved joints, and those three only the eensiest bit squishy… and none of that squishy is in any way looking like it might even chance extra damage to the joints. I am staying on Humera until at least the end of May (when we will re-evaluate and determine if Remicade or Orencia are next). If I can hold in there at about 80% back to normal or even gain a little more ground…. I may be able to hold out for even longer on “just” the tummy shots and not have to go onto the stronger and stronger drugs.
I did get a script for Napproxin (I was coming to the end of the ones from my wrist surgery from last year) to take the edge off when I’m having an achy day.
I’m not sure if I’m looking forward to the next appointment or dreading it… but I did make it the whole day with my hobbit feet and my toe socks and nothing ached at all! Yay!!!
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Orencia is now available for subq. shots, just like Humira. You have to do one loading dose that takes an hour by IV but after that you can give the shots yourself.
Yeah… but.. the comment was… we can tinker with the dose (up a little here or there) if we need to if it is in the office…
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