Starting a New Support Group

 

So, Kim Nolte and I started a new support group on Facebook.  Living Life Large with Rheumatoid Arthritis.

The idea that winded its way through my brain, as I walked home from Giant Eagle on Thanksgiving morning (yay needing milk), was… most groups seem to spend a lot of time “one upping” each other on how bad their RA is, how bad their pain is, how much they can’t do.  If anyone (including my boss) has noticed anything about me, it’s that I try to do as much as I can do despite my RA.

This, apparently, is a good thing.  This… apparently… is motivational to people.  So, we were talking, and we decided that motivational is a good thing.  So we started a group for just that purpose.  People with RA, to lift each other up, to provide useful dialog.  Yeah, some kvetching and bitching, because, let’s face it, RA kind of sucks even if you are determined to keep going.

The ground rules… no bullying… not dumping on people for their religious beliefs… no dumping on people for speaking a different language (they have really cool tools to help translate different languages… google translate got me through my Brazil project at work, it can freaking close the RA gap between people, too).  RA bullies us enough, we don’t need people bullying each other. I’m a  DBA (literally, database administrator… but philosophically(( LONG long story)) dat bitch April) and I will not hesitate to delete someone for behavior unbecoming the group.

SO… if you are on Facebook and you have RA (not to bully, or shun anyone here… Fibro, Sjogrens… any of the wonderful flavors of pain we deal with) and you want to have some support and motivation… come join us.  I have a really hard time with being in your face with self promotion, but I really think this is something worth being outside your comfort zone with… COME ON DOWN… and join us.

It’s very disheartening to see 2 members every morning…

4 responses to “Starting a New Support Group

  1. The only issue I have putting stuff on Facebook is, everyone can see it and I am not sure if I want my family and friends seeing my opinions and comments. I well definitely join the group though

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s