Category Archives: disability

Doing Disney 2019

Five years ago

So… In just a short time, we will be heading out and doing Disney. No, not today, but frighteningly soon (Squirrel and I looked yesterday at the Run Disney page and saw how close the race weekend is). It’s hard to believe it’s here already. It’s hard to believe how much things have changed in such a short time.

Life is short

It’s prompted me to look back at the past year that I’ve been working on getting more healthy, getting more fit, improving my time. It’s been quite a year and I can’t believe that it’s already almost here.

This year, I’m making a concerted effort at capturing the entire trip (good, bad, indifferent, scary, ugly, whatever) because… well… because.

This year we will be doing Disney differently in a few ways.

  1. Bear is handicapped. He’s renting a scooter instead of trying to fly his scooter to Florida. I’m INCREDIBLY happy that he’s made this decision. It’s going to make the airports a little less elegant, but it’s going to be less stress making sure the scooter is safe. We ordered Oxygen to be delivered to the hotel. So he’s not going to have to carry his big blue monster with us. He will have his portable and with the scooter, that should be good. He never thought he would make it to Disney when we booked this trip 11 months ago. I am glad he was wrong.
  2. I’m doing this trip as Lifetime on Weight Watchers (WW). This is going to be most interesting. I sucked it up this morning and bought a travel scale. It fits in a backpack and weighs very little. I’m determined that, when I get back from vacation, I’m not going to have gained much if any weight. Given that my next infusion is my last infusion for at least two months, I really really can’t afford to gain much while we are away. I will gain enough from not having my infusion for that long. I really hope the surgery on my weird elbow lump is worth it.
  3. Three races in three days.

So, I’m planning on chronicling everything as we go. I’ve spent so much time digging and digging for information, I want to be able to pull together what I’ve discovered with what I learn so I have one place for it to be.

Spent yesterday (most of it) packing. I will spend a good chunk of today packing and repacking as well. I want to travel with the least amount of stuff as I can. We always take too much and I know that I already have too much packed. I’m so used to packing for any eventuality and there are so many unknowns and eventualities this time. I need to pare it all down so I know we are good… and still don’t have to pay a billion dollars on overweight bag fees.

I will probably repack ten times. sigh…

I’m up for this (kinda)

I know we can do this (sorta)

Love and Light
April
1/27/2019

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