Category Archives: Covid 19

I am just freaking tired

It is infusion day, so I am tired in general. But the tired that I am is way different than that kind of tired.

I’m tired of having to be the bigger person when I walk into Walmart wearing my mask (because even though I am FULLY vaccinated (as in I got my third dose already so yeah) and I get derogatory comments directed at me. I either get comments about it all being a hoax… or not nearly as bad as the flu… or get your damn shot… or that I am just plain stupid for wearing one… or if I’m fully vaccinated I don’t have to worry about anything so don’t pander to the man… whatever

I’m tired of seeing posts about “them” putting chips in vaccines so they can track you and knowing that at least half of those posts are made by people using their shiny smart phone that has legally been tracking people since the 9-11 attacks. OOOOO yeah… tell people how YOU aren’t going to be tracked and stick that tracker that automagically sends you “there is a sale at that tire store you just passed” adds… and coupons based on your past shopping…. that can hear you and pander adds to you… because yeah… the vaccine is what they will use to know things.

I’m tired of the rhetoric and the arguments

I’m tired of people being judgemental butts

I’m tired of “yeah yeah yeah, I know you have problems but what about MY more important problems”

I’m tired.

No, the vaccine isn’t the magic bullet. Yes if you get the vaccine you can still get covid but not as bad (I’ll get to that in a couple minutes). Yes, you have every right to your views and opinions but you know what, I have every right to mine and if I don’t happen to point out that you are stupid or being a sheep to a different flock (if I’m going what a whole bunch of people are doing I’m a sheep…. GUESS WHAT… if you are doing what a whole bunch of different people are doing you are just a sheep to a different flock but you are still a sheep… you can find a way to be your own lone wolf to eat the sheep I guess but if you are like a metric crap ton of other people you’re not the wolf).

Yes you can pick and choose your pieces and parts of your version of your religion to justify whatever you can do. Even Shakespeare knew that much a bazillion years ago…

“The devil can cite Scripture for his purpose.
An evil soul producing holy witness
Is like a villain with a smiling cheek,
A goodly apple rotten at the heart.
O, what a goodly outside falsehood hath!”
― William Shakespeare, The Merchant of Venice

But you know what… I just spent the weekend worried (surrounded by pieces and parts of my family at any given point in time) about my little sister.

My little sister was fully vaccinated (MONTHS ago because she has parents that she didn’t want to put at any more risk than had to be… and she has a daughter that has diabetes so is at added risk and didn’t want to be the cause of bad things happening even inadvertently).

My sister caught covid a few weeks ago. She was self swab tested and it came back negative but there can be false negatives. They treated her for covid and she was REALLY sick for several days and improved. End of last week her doctor cleared her to start back to work on a limited schedule.

Friday she was out an about doing the things that she generally does… towards afternoon she realized she wasn’t feeling right (her dr told her to be aware if not feeling right happened and get to the ER). She is a trained nurse so she knows what to watch for. She went to the local ER. They knew something was up but didn’t know what. They were going to admit her for observation. Then they realized something serious might be up and they decided they didn’t want to look bad if things went south so instead of putting her in THEIR ICU… they life flighted her to a semi local hospital. By the time they landed she was in the middle of a massive heart attack (two of the four blood vessels were blocked by clots). She died three times and had to be revived with the defibrillator… THREE TIMES. This, she/we were told was classic post COVID complication. No plaque in veins just huge clot that has now exploded and is hundreds of little clots… on blood thinners… having ecgs… moved (moving?) to a “regular” room on the heart unit. Will need a pace maker when she gets strong enough but in the mean time will be wearing a life vest for at least six months (those are the personal aed devices that monitor your heart rhythm and will shock you back to normal… alive… if you pass out).

They are keeping her a few more days to monitor her.

Her doctor told her that it was a blessing that she had been fully vaccinated because if she hadn’t been… she would not be alive right now. Her covid WITH the vaccine was sever enough that if she hadn’t been vaccinated she would have ended up intubated and would most likely not have made it.

I’ve heard my mom cry hysterically over the phone… not able to catch her breath… when she called and told me that sis was on her way to the hospital in life flight. I sat around the table talking to very sober family who rallied around each other waiting to get information from little sister via phone/messenger/facetime. I’ve heard the fear and the pain.

And this morning it’s back to being Monday. I’ve driven 500 miles in two days (two trips there and two trips back… because work…. and dogs). I’m sitting here listening to the morning snorage that is all around my feet because they are dogs and they sleep A LOT but they also know and want me to be okay.

And I’m realizing how tired I am. I watched as some people pretended to support the family while wedging in their own agenda to the conversation. I’ve watched while people looked at me with hard side eye for wearing my mask in Sheetz to grab pop and coffee. I’m tired of arguments and rhetoric and bullshit and my tolerance for bullshit is so epically low that I currently refuse to deal with it. I’m unfollowing people (because lord knows I can’t block people).

Tomorrow should have been my anniversary.

In 19 days it will be the anniversary of bear dying.

Covid has been a thing and my doctor told me that covid will forever be a thing and the best thing I can do is avoid people at all costs and learn all of the right ways to protect myself and my family. Even with fully vaccinated for flu or covid or pneumonia I will only ever be 65% protected because of my amazingly expensive drugs that allow me to maintain a fairly normal life.

If you see me with my mask on, don’t get all sanctimonious on me. I don’t care what your opinion is. You have yours and I have mine and if you don’t want me to get bitchy in your face just leave me the hell alone. If you don’t like it, I DON’T CARE. And the next person who tells me that they were bullied into wearing masks for a year so now it’s my turn to be bullied because I am still wearing one… don’t be surprised if I tell you to go sleep with the sheep in your own damn herd.

I’m tired.

I’m tired and there is no end of bullshit in sight.

Love and Light
ajw

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And… Just Like That… Normal…

Sitting on the porch in my hoodie listening to the birds come awake with their songs trying to keep my head from completely exploding.

It’s not working.

Saturday I got a letter from The Hartford (the company that we pay to process the ADA paperwork for not going back to the office when only 41% of the people in my county are fully vaccinated) saying that my work from home was permanent. So I asked HR what exactly permanent meant… permanent for 30 60 90 days or what the paperwork actually says permanent permanent. They told me that, despite my ruling that work from home is permanent, The Hartford is wrong and they are re-examining what my doctor’s paperwork REALLY meant and I guess at some point I will be made aware of which day exactly my ADA is done and I have to join the throngs of people streaming back into work.

Few hours later the edict came out that it’s going to be business as usual and they are taking away the elevator restrictions, the cafeteria restrictions, the meeting room restrictions June 2 but are keeping for a couple more weeks the restriction on EVERYONE flooding back in to work. Masks are no longer required (effective immediately for fully vaccinated and everyone if they decide they don’t want to wear one) but if you choose to wear one no one is allowed to make fun of you… yeah, that’s going to work… July 12 everyone will be welcomed back to the offices. It would be nice if everyone were to be vaccinated but that is only kind of a suggestion and not a requirement… but you can pack a dozen people into the elevator knowing that at least 7, statistically, are currently not fully vaccinated. I will need to figure out what stairwell will be open to take the stairs… and I will likely start losing weight again because I work on the 17th floor.

They are working on a flexible working policy. Sometime next week we will probably be made aware of what that is going to mean. I know that I will have to go back to working at work at some level. And I miss my boats. But knowing that I will have to go back to “normal” at some point… whatever my normal will look like… is one thing. Knowing that people who have been vaccinated fully (nurses at the facility where a friend of mine works) have been getting COVID anyway is scary. Knowing that, at best, people like me (on immunosupressants) are likely 65% covered according to my Rheumy is scary. Knowing that Rheumy said that COVID will be around forever like the flu and that there will be flu shots and COVID shots and pneumonia shots like there are flu and pneumonia shots now and that they are already working on the fall booster for the shots we already have taken kind of helps my head a little but only a little because I know an awful lot of people don’t get their flu shots now and if COVID keeps having so many variants what is that going to mean for forever. Knowing that I will join many of my friends and some of my family in always having a mask with me and wearing it when I’m in close proximity to other people… indoors a lot because of HVAC and people and that there will be people who make fun of me for it is kind of sobering.

It’s been nice only having to deal with seasonal allergies for the past 16 months. No cold… no flu…

So I sit here and enjoy the morning as long as I can… knowing that I will need to address reality as soon as reality hits. I have a race in 12 days… and in person race… and with the new CDC suggestions I don’t know what that is going to look like now. It was supposed to be staggered start times. It was supposed to be okay-ish. But what now?

Fully vaccinated people can go back to life as normal… not washing hands so much… no 6 feet of separation… no masks… but no one will ever have to prove that they have had even one vaccine let alone both of them. How many people will continue to get the vaccine if suddenly everything is back to normal anyway? There are an awful lot of people who have already said they won’t be getting the vaccine but are waiting for herd immunity. There are an awful lot of people who don’t wear masks correctly now and will suddenly not have to wear them at all.

I know that the best I can do is the best I can personally do for myself and my household… but… fear is kind of sobering… and I don’t get any more panic attack pills because Bear died 214 days ago so I don’t need them any more.

And sitting here… birds singing… woodpeckers finding their breakfast… sun coming slowly up… these are the things going through my mind. Not just now what… but… NOW What…

Breathe in
Breathe out
One day at a time
and buy a metric ass ton of hand sanitizer…

Love and Light
AprilJoy
5/18/2020

It’s NOT Catching

Yesterday was a hard day, mentally, for me. It was hard in a lot of way.

Yesterday, Bear and Squirrel (lol… sounds like the start of a children’s story) needed to get blood work done. Nothing scary… just that time of the year again… so… yeah. We found out that you, now, need an appointment to get lab work done (okay… maybe not need, but highly recommended). Turns out it was HIGHLY recommended… there were people there waiting when we got there that were still waiting when we left. Bear’s was fasting so we went early as I could get them there.

When I go for my infusions, they have the waiting room set up so that people are actually 6 feet apart. There are “couches” (longer two together chairs) for people who live together. There are socially distanced chairs.

The phlebotomist lab…. not so much.

There are chairs back to back. There are couches back to back. They took out every other chair. There actually is just enough room to push a wheelchair between the chairs in the middle of the room…. barely.

Back to back chairs… I guess that implies that you don’t ACTUALLY have to socially distance if someone is behind you? I guess that implies that six inches equals six feet?

Removing every other chair… I mean… they aren’t airplane sized seats, they are doctor’s office chair sized… but… taking out every other one… that is what… somewhere between 2 1/2 and 3 feet…? And the office was pretty well packed.

That was the start of the mentally not goodness.

But then… I’m pushing Bear in his wheelchair. He has on his mask. He’s not coughing. He’s just sitting with his oxygen strapped to the back of the chair and the canula up his nose. I pushed him as far away from people as I could (which was an adventure in itself). I found a chair that was empty with a spot beside it and a table next to that so… it was kind of as good as it was going to get.

There was a youngish woman sitting in a chair across the “isle” from us. I pushed him past her to get to his spot. We were probably 4 feet apart (best it was going to get there). She was sitting back to back against another woman in the chair she was in… so 6 inches MAYBE there.

I parked Bear and she kind of flipped shit. You could almost see the panic in her eyes. She got up and moved 6 feet (maybe) to sit back to back with some guy.

Because bear (73 years old and on hospice and on oxygen) was sitting (mask on, oxygen on) further away from her than she was with the woman behind her to begin with or the man she moved behind.

He is not contagious. Old is not contagious. IPF is not contagious. Wheelchair reliant is not contagious.

I’m so freaking irritated. No one was coughing. You have to have a mask on to get into the clinic. You have to have your temperature taken to get into the clinic. I mean… you can always lie about having been exposed, I guess… but…

It hurts my soul that people think handicapped people are overlooked… are not seen (or pretended they aren’t seen)… treated, in general, like shit.

If you’re one of the ones who thinks that a wheelchair and oxygen and 73 means they have cooties, I’m really glad you’re perfect. I’m glad that you don’t have anything wrong in your life. I sincerely hope that you stay perfect for your whole life… I hope you never have to deal with having an invisible disability (me and my RA). I hope you never have to deal with having a (or loving someone with) a visible disability. I hope your life stays as perfect as it obviously is.

I just don’t understand. And now with covid and the fact that people who recover are going to likely have residual either temporary or permanent disabilities. There are going to be how many more thousand people who are going to be treated like shit?

I’m really glad, right now, that I am already invisible. I got used to be invisible when I was obese. I am used to having an invisible disability… that I only have to cope internally with my crap and not something that people can stare at or stare through.

It hurts me that Bear is going through all of this… everything that has changed in his day/world. He keeps trying… I can’t imagine how much all of the changes are hurting him. Adding insult (almost literally and completely) to injury of having people OBVIOUSLY trying to run scream away from where he is hurts MY heart, I can only imagine what it does to his heart.

Add to that we hit an all time high in covid numbers in Ohio… and you get a really not so great kind of day.

But… today is a new day, I guess. The numbers will be down today because it is Saturday. I’m starting to feel more accomplished because I’m making progress cleaning the basement. I have to keep trying to shake the Debbie Downer-ness that is going on in my head.

99Walks is really helping. Making myself walk is helping. Spending time alone with myself is helping. The moral support I get from the 99Walks Facebook group (is it shallow that the positive feedback makes me feel good?) is helping. I hate taking the time away and leaving the house because I never know what might happen with Bear when I’m not here. I need to work at my training for The Goofy/Dopey for 2023 for myself… but… this whole year has really messed with my morale.

WW Zoom meeting is over… Time to kick it into gear for Saturday.

Love and Light
AprilJoy
7/18/2020

Taking responsibility for my own safety.

Ohio has started to see a drastic rise in Covid cases.

My county is the second highest county on the “oh crap” scale of cases.

Masks are not mandatory in all public places (I’m still not straight on whether or not the sidewalk in hour housing area is considered public places or not but I’m erring on the side of caution).

Found out yesterday that there are 79 positive cases in my town.

I managed to make it to the bank this morning with Squirrel. I’m probably not going anywhere else any time soon. We have tickets to the Asian Lantern Festival at the zoo for Saturday night. I’m not sure whether we will just suck it up and lose the money or not. Maybe. Bear doesn’t want to live in fear or locked up for the rest of whatever time he has left. If I push him… I can control how close or far away we are from other people. I would like to make these memories with him. I guess the next few days will tell a lot.

Monkey Butt went for a walk last night. The bar’s parking lot had not one empty parking spot. Red Lobster, very busy. Outback Steakhouse… nearly full parking lot.

I’ve come to the point where I can’t expect other people to care enough about humanity (at least not in the United States… ) to take pretty much any precautions as they relate to people who are not themselves.

I won’t give up on trying to help, as much as I can, the common good. But I think (no, I know) I’m going to have to step up my game on taking care of myself.

I bought antibacterial bowls and glasses and straws from silipint. I really like the pint, the 22oz and the bowls. I don’t like the 12 oz cup as much because the lid that goes with it doesn’t fit nearly as well on it as the bigger lids fit the bigger glasses. I can carry them with me and I can put them through the dishwasher (or oven). They are heavier than any other silicon food/drink containers. Whether it is a good thing or bad thing, it is heavier and harder to push/slide across a table.

I bought sets of silverware. I can toss them in my purse/backpack and carry them with us. I can know that it is clean and not been touched by anyone else.

It sounds a lot like I’m a germaphobe. I’m really not. I have no problem with picking a penny up off the ground (ACTUALLY happened today). I can pick up fruit or cans or bottles and not completely melt down. I don’t touch my face until I’ve washed… but I don’t lose it.

I’m starting to actually feel a little more ‘in control’ of whatever right now. Between that, and 99 Walks, I’m starting to be able to center myself and find the joy.

Love and Light
AprilJoy
7/9/2020

Choosing Joy… 99 Walks… Joyful Wanderer… July 4th edition

It’s the 4th of July 2020. I am so over politics. I am so over Covid 19 and its evolving cousins. I’m over the Murder Hornets and the Meth Gators and being scared all the time.

January is the traditional time of “reset”. And in January I decided that my word for 2020 was going to be JOY. And then February happened… then March happened… then April and May and June. I have been fighting so hard to just maintain any vague semblance of sanity and not falling into a pit of depression.

Don’t get me wrong. I’m on year three of my anti-depressants. And there are days when I really want to message my Dr to see if we can’t adjust the dose. It’s not like I have much to be depressed about. Bear on hospice, knowing that the flu probably put him there. Races being cancelled. Fairs and Disney. Movies at the theater being a thing of the past. The world as we know it changing to one where hate and derisiveness are rampant. Realizing just how polarized things really can get. It’s made this Mary Sunshine pretty much a Debbie Downer for a lot of days.

Then I found 99 Walks.

I’m not even sure how I found it on Facebook, to be perfectly honest. It might have been an ad on my feed. I don’t know. I know whatever it was, I saw the shiny thin bracelet that is your reward for making your walking goal every month and I was hooked on the bling. Ask anyone… I have a crap ton of medals hanging in the window of my office at home. Bling is an awesome motivator. And I needed some heavy duty motivation. Three good things every day for months on end wasn’t doing it. Something had to.

So I went and investigated. There is an app for that (go figure). There is a book. There is a central Facebook group. There are spawned off other Facebook groups. Everyone is so incredibly supportive and friendly. It is my respite from the world. It’s not a magic bullet. I still find myself in a pit with nothing to look at but mud walls and worms kind of frequently. But it is helping.

This month the theme is Joyful Wanderer (did I say that yesterday?). I’m taking this month very much to heart. I’m very mindfully walking. I’m stepping up my game. I’m very determined to get my Joyful Wanderer bracelet.

I’m struggling to get back to Choose Joy.

I’m manufacturing ways to try to trick my brain back into some semblance of who I am because I really really miss being me.

Does that make any sense?

So tonight I’m sitting here waiting on French Fries to be finished cooking, nursing a shoulder that has been flairing for about four days now (it usually doesn’t last this long and I’m really not enjoying it). I’m putting my left hand where I need it to be with my right hand so I don’t move the muscles so much in my left shoulder. I’ve been putting Boo Boo Salve on it pretty regularly (it’s awesome stuff… all natural… a friend of my mom’s makes it… https://www.rainbowskytrading.com/) and adding in the Napproxen at night.

Today we went to the zoo again. It’s coming up close to the Asian Lantern Festival and we wanted to see them in the daylight. That, and the Dinosaur experience is open so… yeah.

It was particularly scary to be out and about today. The state isn’t as bad as Florida or Arizona or California right now… but we are double what we were a month ago and it isn’t looking better any time soon. Our county is the second highest number of Covid cases in the state. The mayor of Cleveland made an executive order that everyone has to wear a mask when they are in a public place.

It was good to see, though, that people were actually wearing masks this week at the zoo.

I worked hard today at mindfully spending time with Bear and Squirrel. It was, altogether, a good day. Pictures to treasure. Memories made.

Should we have gone given everything? Probably not. But we were as careful as we could be. Handsitizer. Clorox wipes. Masks and 6 feet apart (even when it pissed people off that I deliberately would not push Bear’s wheelchair past them when it was too close. Bear says he will die sooner if he can never leave the house. I can’t take everything away.

Starting now I will be starting to use curbside pick up.

Am I scared?

Hell yes

But I can do this. I can’t say this is any kind of new normal… but it my current reality and I have to find myself again.

Today was one walk of 2.6 miles pushing the wheelchair and one walk of 1.2 miles. both were mindful and peaceful.

Love and Light

AprilJoy

7/4/2020

Joyful Wanderer… 99 Walks July

It’s been rough. Mentally, it has been really rough the last few months. And now Ohio is at 1301 new Covid cases in a day. That is the third single biggest day yet. Our last three days have been 743, 1076 and 1301. I’m worried that today will bring us up over 1500 and that will be the biggest day ever. They have implemented a county by county color coding system for the state.

Trumbull Ranks Red in New COVID-19 Rating - Business Journal Daily

7 counties are red. We are one of them.
1 county is very close to being purple. I fear for Columbus area. I fear for Cleveland area nearly as much.

And that, my friends, is the lead in to my today.

Right now, I am sharing my space with my bulldog. My buddy. He’s guarding me… keeping me company… being my boy.

Yesterday I kind of melted down. Between the notice that the day before yesterday came out with the news that there were 3 confirmed cases of Covid in the building where I should be working but thank the stars that I’m not and one presumed positive (a tenant of our building, not someone from our company) and the notification that we are one of the biggest hot spots in our state… it was not a great day.

But it was a day that I needed to step up and shake myself off and knock some proverbial sense into myself. I can let this shit beat me down. I can let it define me. I can let it take away everything that I have always been. Or I can ‘man up’ (so to speak… but I guess that isn’t politically correct any more either) and get my own shit together.

I’ve paid for three months of 99 walks. I’m really liking the app and the Facebook group. It is an incredibly positive bunch of people. The theme of July is Joyful Wanderer. June (I made my goal so I get the bracelet) was share your sunshine (or share the sunshine or something like that) and it was a good theme and all… and I really really like the May bracelet that was Inhale Exhale (because yeah… ) but July… July I am really taking to heart. My word for the year in Joy. And I have been struggling mightily with it. But now it’s time to focus on it.

Posted in the 99 walks some of the mental and emotional struggles I’m having. But this morning I really decided it was time to put my shoes where my mind needs to be. So Squirrel and I went for a walk. We went to our park. She wasn’t ready, mentally, to go back to the lake and I’m not really sure I am either. But our park… yeah, I can do that.

What I didn’t realize at the time was that they have been doing so incredibly much work in our park, I know that change happens and change is okay. This change was kind of depressing. They ripped out the dam that made such a pretty waterfall. Right now everything is really dug up a lot and you have to sneak across the BRIGHT ORANGE fence (where someone else had already stepped it down to the ground) to see what has been going on. It was hard to see what they had ripped out, but it is good, too, because they are making it in such a way that you will be able to go down to the edge of the creek instead of taking your life into your own hands if you decide to do that. I viewed it with mixed feelings.

We then went to the wildlife sanctuary part of the park. Squirrel sat in the truck (too humid for her to be comfortable) and I went for a walk. I walked to the pond and watched the fog blowing across the surface of the water. I went to the little pond. I went along the creek. I went and sat for a few minutes at my favorite oak tree. I rescued (not sure if that was something I could get into trouble for or not so… no no, I didn’t do anything) a few of her seedlings and brought them home. They are now planted around my yard.

After I planted the saplings, I came in the house and started a decent sized batch of sauerkraut to (hopefully) fermenting and in about 4 weeks I will be able to can it up.

I’m not completely back yet. But I’ve made the conscious decision that I need to be back and I need to get my proverbial shit together and stop letting what other people do and what other people don’t do impact my day.

I need to center myself and get back to working on my word for the year. It’s the middle of the year and I’ve lost at least a quarter year being lost and afraid. Covid isn’t going anywhere and I need to find a way to live with whatever this reality is.

Stay safe

Love and Light
AprilJoy
7/3/2020

Just The Flu

<rant (fair warning)>
You logic (or maybe your humanity???) is flawed. It’s not that I have a particularly thin skin. I have been bullied my entire life. I get it. I have a kick me sign. Dynomutt, scag, nerd (okay that one turned out to be true… ), dogface… I get it. But sometimes the stupid just hurts my brain so badly that I can’t help but scream.

This is my scream.

It’s not COVID… it’s ONLY the Seasonal Flu!!! DUH.
Okay, let’s suppose that your premise is true. Let’s just suppose for the sake of argument (and because I’m just too tired to give two shits and a poptart) that that were the case. Let’s just suppose that the reason you don’t wear a mask… that you don’t stay the hell away from me in stores… that you don’t stop the endless bitching is that it is the flu and everyone knows that the flu kills WAY WAY WAY more people than the stupid SHEEPLY Covid crap has.
Two things.

1, if it is flu it isn’t covid. you can’t have it both ways. Pick one and get on with your kvetching.

2. if it is the flu and EVERYONE EVERYWHERE knows that the flu kills bazillions and bazillions of people every year so duh… then that makes the argument even worse.


IF for the sake of argument it is the seasonal flu then um, the season is over and all of those people dying to make your life inconvenient are just stupid and wrong and not dead… so there


If, the the sake of argument it is the seasonal flu and wearing a mask will keep someone’s mother, father, grandmother, great aunt Eloise on their mother’s brother’s cousin side from dying of the Just Plain Flu… then why is it such a bitch fest to wear the mask while you are in the store…


I get that getting drunk and slobbering and coughing all over people at the bar is just freaking awesomely fun. I get that wiping your runny nose and touching the door knob and grabbing those nachos and using your hands in the salad bar is just so much freaking fun. I get it.


And I get it.


I want desperately to get back to ‘running’ in a race that’s a real race.


I want desperately to go back to Disney like we were supposed to be going to do this past March just the two of us that will never happen.


I want to sit in my office and look out the window and watch the freighters wind their way down the Cuyahoga.


I want to not have to know that I’m watching someone I love desperately die.


But you know what? This whole “JUST THE FLU, DUH” adventure has taught me a lot. It has taught me that an awful lot of people just don’t give a tinker’s dam about other people.

They don’t.


Know what else? When all of this is over and all of the bitching and gnashing of teeth stops (well, okay, whatever… people are acting like it is nothing and over now so… whatever)… I’m going to get my flu shot because I’m one of those inconvenient statistics that everyone keeps throwing out there. I’m one of the expendables. But when this is all over… whenever that is… I’m going to keep doing the needful. Flu season, I’m going to carry my handy dandy mask with me and when I’m around anyone I’m going to wear it. If this is JUST THE FLU, then this is just the flu and it’s all good and my trying to keep myself, the people I love, and even your sorry ass safe from JUST THE SEASONAL FLU and being one of the BAZILLIONS who die EVERY YEAR from that, K? For what it’s worth… my wearing my mask isn’t hurting you at all. It is not a political statement. It just says way the hell more about me than it does about you.


Don’t like the government regulating that you pretend for one hour every couple days or so to be a caring human being, fine. Whatever.
I have a limited number of give-a-damns in any given day and… guess what… just used them up. Get too close to me, I’m going to suddenly have a HUGE WET MEATY COUGHING FIT. I am.

Might start carrying a cane and accidentally trip you if you step into my bubble. Consider this fair warning.


I wish with ALL OF MY HEART that I could go back to February and do so many things differently… with all of my heart… because maybe things would be different for this house right now.


This whole JUST THE SEASONAL FLU adventure has taught me how many people just don’t care.


but it has taught me, too, just how many people do. And for that, thank you…

Thank you.


I’m tired. I am deep down bone tired.


</rant>


Time to get on with Tuesday.

Love and Light
AprilJoy
6/30/2020

Gallery

Is this what you see when you see me?

I’ve been sitting here, reading posts on a Facebook group about… do you or don’t you wear a mask? Do you or don’t you believe it’s a pandemic? Do you or don’t you bleat when you walk around all day … Continue reading

I’m just so freaking tired…

So, yesterday, I did a thing.

I posted a gif on Facebook of a man who is talking about how 70 – 700 people dying so the US economy can rally is acceptable. The off camera person said… so… 70 is the number that’s okay? Man: yeah… 70. Off camera: Let me show you 70 people.

70 people in that man’s family came around the corner of the street.

When he realized that there were 70 people who were in his family and that 70 suddenly had faces and relevance his numbers changed.

Was it staged? Um… Duh.

Was it to make a point that every single one of the “acceptable losses” is a person? Um… duh.

I’m so tired right now. I’m so incredibly tired.

A friend of mine from elementary school commented on the picture.

But on the other end of this horrible double edged sword, is the awful fact that's thousands have not received a penny of unemployment in 7-8 weeks or more. These folks are losing their businesses and not even being able to afford food.. terrible situation whole way around. 😞

<because… again… duh… it’s not like I don’t know that too… and I KNOW those faces as well> and I answered… I answered because I’m tired. I am so sick and tired of all of the bullshit. ALL of the bullshit.

I know. I really do know. And I’m terrified of the way the economy is and the way it is heading and I hate the way the country is handling this so incredibly horribly compared to EVERYWHERE else. But people are very very cavalier with “eh… 70 to 700 deaths are acceptable as long as it fixes everything ” (which it isn’t going to fix everything like people believe. there is no magic bullet in this case) until they are faced with the acceptable losses being THEIR losses.

Would all 70 acceptable losses be in one family? Not likely. But people don’t put faces to the acceptable losses they keep throwing around. People use a tone of voice when they talk about acceptable losses… like… Yeah… whatever… a few more dead people… so what… pffft

I have family in the same situation… where they don’t have an income and they are waiting and waiting and waiting for stimulus checks and unemployment that feels like it will never come. But I also speak as someone who cavalierly gets lumped into that big giant “Eh, F$%^-em let them die so the economy can be as fabulous as it’s ever been” feeling you get from seeing people talk about acceptable losses. Three people who live in my house would very likely die if any of us got Covid.

I guess that’s three from someone else’s house that wouldn’t have to… but still… I’ve had it right up to the eyeballs with hearing about how it’s “only” the elderly and vulnerable who are likely to die so what’s the problem.

I’m tired of spending 12 – 14 hours a day sitting in my office at my computer busting my butt working only to be made to feel like a drain on society.MY point in this is… every acceptable loss is someones family… someone’s brother, sister, son, daughter, mother, father, best friend….

I want desperately for people to be able to go back to work and to be safe. But I want people to be safe. I want people to not have to get shot in the face for telling people to put on a mask. I want people to not get spit on for asking someone to please stand 6 freaking feet away. Hell, I don’t want people close to me than that when it’s not this fugly mess and I will deliberately run into assholes in the store before all of this if they ride my heels with a cart or shove their smelly armpits in my face because they HAVE TO HAVE THAT whatever that happens to be where I’m shopping and they can’t wait the 45 seconds it’s going to take me to get my whatever from where they HAVE TO BE.

I’m tired.

I’m tired of bullshit.

Everyone else gets to go “LOOK LOOK LOOK at what those assholes in the <whatever political party they are “against” and are HATING… and I’m so flipping sick of the hating> are doing to make the whole FU#$%^& world so much FU#$%^& worse than anyone else in the whole FU#$%^& world could make it!!!!!”.

I Just thought maybe people might need to be reminded that every acceptable loss matters to someone somewhere…
or maybe not

I was good. I didn’t reply right away. Probably should have. If I had done anything at the time, I probably would have just taken the post down… because I don’t make waves and I don’t voice my political opinion because I’ve been bullied my whole life and I really don’t need to provide more fodder for people to use to take pot shots at me.

But I am tired.

I’m tired and I’m scared and I want about 2/3 of the time to go sit with my back against my favorite tree at the park and wrap myself in the throw I’ve been working on for years and cry until the tears won’t come any more.

This whole mess has taken its tole on my house.

Squirrel is so on edge most of the time and she is facing the knowledge that her girlfriend can only handle the good times and can’t handle it when Squirrel falls apart. She is facing friends that have already told her that, if she wears a mask to school or around them for any reason they will make fun of her. She just started Humera… added to the other two immunosuppressants… you know what… Covid hunts people like that down. Would she die? Statistically probably not. But that’s a chance.

Monkey Butt has started to shoulder the responsibility for keeping the rest of the house from going completely bat shit crazy. HE (my jaded son who has hated humanity for years) has started to hunt for the bright sides to show that it’s probably really not so bad.

Bear? Hospice. I’m not handling that really well, either. Hospice makes it really really real. Last night we <all four of us> went to Lowes. It was the first time Bear had been inside of a store in over two months. I needed fence to keep my dogs out of my garden and I needed containers to grow some of my plants in… and I needed soil for in those containers… I needed stuff to work on my witchy SHTF prepper stuff outside so I don’t have to worry quite so much about what is coming… and to keep us as healthy as we can be inside our walls. I needed Monkey Butt because bags of garden soil are heavy. Squirrel needed to get out of the house because… she hasn’t been venturing out even when I have made my panic filled ventures out into the craziness. And Bear needed to be out. He needed to be out and where people outside of the four of us (and his hospice nurse Dave) are. The last time we were at a store together, he pushed the cart. Yesterday he drove my truck, but he needed his wheelchair because he knows his legs won’t carry him even with the cart through the store. It’s getting that real. What would Covid do if it came into my house?

And me? I am just tired of the stupid things that people do to each other. I’m tired of people ridiculing the choices we have had to make. I don’t LIKE doing a half marathon virtually with a mask on. I don’t like being terrified every time I walk into a store that is full of people who have apparently decided that the current situation is an excuse for them to let their asshole flag fly high and proud. I have been loudly and publicly ridiculed and laughed at in a Walmart isle because I chose to have a mask and gloves (and because losing 50 pounds has messed with my ability to maintain feeling warm) and a hoody on a 50 degree day. I’m trying to keep up with everything in the house. I’m trying to hold it together because Bear can’t handle it when people lose it in front of him… so I hold onto my control as long as I can until I can’t any more. And I spend hours at my computer working because I do still have a job to “go” to and I need to keep that job. I try so hard to down out the TV when it’s on because everyone talks about acceptable losses and how it is “only” (except when it’s not only) the elderly and vulnerable and fragile who are at risk any way. I’m one of the at risk. I take my own immuno-supressants and I qualify for elderly. Would it kill me? I don’t know. Maybe, maybe not. I know that I’m feeling very lost and very scared and I struggle a lot of days just to make it through the day without falling completely apart.

But suddenly I don’t understand both sides (either side) because I’m trying to point out that NO ONE anywhere seem to be faking the attitude that would feel better when they talk about acceptable losses. I guess when you talk about it in terms of acceptable losses it depersonalizes it. Like when you talk about the HUGE numbers of people who are struggling to survive the devastating unemployment numbers. Like when you see cars lined up at food distribution centers. We get to see the faces of the nurses and doctors who are saving lives. We get to see the faces of some of the people who have beaten it. And those faces give my hope. They are a very good thing. But there are faces behind every number that gets thrown around. The numbers of people working devastating hours in what currently amounts to nearly a war zone at stores (if three people can shoot a guard for saying you have to wear a mask and you are in the position of working in stores like that IT DOES AMOUNT TO A WAR ZONE). The numbers of families (mothers, fathers, children) who are facing another day without money… without food… without <in a lot of cases> hope. THOSE are faces too. They aren’t numbers. They aren’t statistics. THEY ARE FACES!!!

I guess I will leave my soap box now. Will it do any good? Will it matter? Yeah, probably not. But it did clear my head a little and give me a voice through witch to scream.

Love and Light
AprilJoy
5/11/2020

Just Like It Was Before…

People are talking about when life can get back to the way it was before. The way it was before Covid-19. The way it was before everyone became aware of all of the things they touch and all of the ways you can spread diseases… any diseases… not just the pandemic one.

Funny… I thought I was super duper careful about what I touched and how I thought about things before. I mean, I’ve had active RA (been classified moderate to severe for what… 12 years?). I have been washing my hands and singing happy birthday twice. I’ve been washing tables off at restaurants. I’ve been “careful”… but I’ve never really, I guess, been CAREFUL.

People talk about how it’s just like the flu. People talk about how mild their symptoms were, they barely knew they had it.

People talk a good game about social distancing… and meet every evening in the driveway within arms length of each other to discuss the day. No gloves, no masks.

The mail man walks up to you to hand you your delivery box… no gloves… no mask… hands it to you… and you have an internal panic attack because… because you were just walking around the house to go inside and you didn’t have your gloves on and you didn’t have your mask on and he just hands it to you. It was in his truck with lord knows what other stuff. He has touched mailboxes and mail and (apparently) other people… and here you are walking around your own yard and should you wear your mask and gloves not out in public but in the semi-privacy of your yard?

Back to normal?

I don’t know if I will ever get back to “normal” if what before was was normal. Covid can live on surfaces 72ish hours (or 14 days depending on whether you are a cruise ship or not…) but the flu can live on surfaces (yeah yeah… depending on surface, humidity, temperature and the phase of the moon and what color underwear you’re wearing blah blah blah) for 48 hours. Two days. Who touched that door handle two days ago? Who pushed that elevator button in the last 2 hours let alone the last 2 days?

Am I a germaphobe? No. I will eat tomatoes off my vines without washing them. I will snuggle my dogs knowing full well they have been rolling in the mud. I will talk to people (eventually… when all of this is over) without the use of technology between us. My house will never be pristine (I have four dogs… I’ll just be glad if I can keep the dust down to a small “Pigpen” cloud most days).

But I will be way more aware of things.

I will probably bag my groceries less by just tossing anything in the bags… I will bag cardboard together, cans together, perishables together. I will leave the cans in my trunk (unless I NEED them sooner) for a few days.

But more…

Normal looked very different in more ways than just that. Normal was running and going and doing and not time for this and no time for that. I love having time. I love being able to do things as a family that we just didn’t find possible before.

Movie night. Game night. Putting jigsaw puzzles together, together. Sitting on foldy chairs in the front yard and talking.

It will be nice to be able to get in the car and drive to the lake. It will be amazing to get in the car and drive to mom’s for a few hours. It will be a hugely special treat to go to the store and walk around and browse rather than just get in and get out (or more… order everything delivered).

Will I ever go to Disney again? My plans are still to run the Goofy in honor of my Goofy. Looking at it now, that may not be before there is a Covid shot I can get about the same time I get my flu shot. Will I look at running in races differently (10000 of your closest friends herded into corrals)… oh yeah. Will I do it? Hell yeah.

I will continue making my own hand sanitizer because I just like mine better than the commercial gel kind. Will I carry some in my car, my purse, my pocket, my backpack, my desk… yeah. And I will use it way more religiously than I ever have before. And I will carry gloves and a mask and my buffs (which I do anyway because well… buff)… yeah, and I will use them.

Life has changed here. Covid-19 situation in the world has changed me in a lot of ways. Some good… some not so much. Monkey butt said, last night, that he thinks some of what I’m doing right now will stick forever… making four thieves vinegar… making citrus cleaner… making citrus enzyme cleaner… coming closer to zero waste. He’s probably right. And I’m enjoying getting back to growing my own herbs and starting my own plants.

Life has changed.

It will be good to get back to not being terrified of the outside world. It will be good to not think judgemental thoughts over what other people do in any situation.

I will take way less for granted.

And I really really hope that life doesn’t actually get back to what normal used to be.

Will it ever get back to “normal” if normal was what it was before? Probably not. At least not for me. There will be a whole new normal. I’m not sure when that normal will be… but there will be a whole new one. And it’s okay.

Love and Light
AprilJoy
4/9/2020