This Week at the Rheumy

Saturday morning… Coffee this morning that is twice as much hot milk as coffee.  I realize (as I sit in the quiet of my special space watching light steal the darkness from the sky) that everywhere I go changes me.  Brings new realizations and experiences… and I work to make them mine.  Ecuadorian coffee… Vietnamese coffee… Espresso… tea brewed lose in my infuser cup…

It is a good morning.  It was a good week.

I had to put my infusion off for several days, so it was starting to be an ouchy week… but not too bad.

Because my finger was being very problematic for almost the entire month off and on, the Dr wanted to see me.  Turns out she isn’t actually in clinic on the day I was there, but she wanted to be paged, and she was, and by the time I was done with my adventure (Nurse, PA, Infusionists) she was there.  She’s reasonably happy with my progress.  She suggested I go back on prednisone for 2 weeks at 5mg a day.  I don’t think I will.   It is progressing and is tolerable.  I think I’m okay.  But it was a good feeling to have her make a special trip into clinic to check it out and make sure I’m okay.  And I found out that she was concerned enough about it to be looking up possible orencia reactions to see if maybe that was the issue.  I had to smile at that.  I was trying to look up the same things.

My infusion went off without a hitch.  I got juice and crackers… always a yummy treat… and was on my way after only 90 minutes (both appointments, end to end)… just long enough to cost $6 parking… yay me.

And I’ve managed to try to reset my appointments to first thing in the morning.  Not as early as Dr Booth, but not bad.  It makes my parking a little more creative, but if it isn’t storming I don’t mind parking on the roof.

So here I am.  Bright and early on a Saturday morning.  My furniture finally came yesterday (the kitchen table and my desk that we have been waiting for 12 weeks to see).  It showed up yesterday morning and the nicest Amish guy and his driver unloaded it and set it up.  You can still smell the faint traces of wood finish on them.  And today I make a concerted effort to try to get the office cleaned back up and organized and tomorrow, maybe, I can get back to trying to finish unpacking in the bedroom.

And Monday, my little girl and I (my daughter, the one who said she would never ever ever do Yoga) start Gentle Yoga at the Rec Center.  I’m looking forward to getting back to Yoga.  MAYBE I will even start doing the 45 and over yoga a second day a week!

Love and Light

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