Category Archives: Disney Princess

Thirty Something Days Until Vacation

It’s January.

It’s snowing very lightly. It’s 26 degrees Fahrenheit .

Sorcerer Radio is on my my Echo (I really really want to thank my boss for not getting me a gift card this year. I’m in love with Alexa).

Coffee is… well… everywhere…

Gym is done for the day yesterday (I clocked 7 miles on my “I need 4 miles today” training schedule… today is 11.5… yay). If I follow my Google Pedometer plan, I’ll hit 13.3. Next Sunday the high is supposed to be 18. I’m really really really glad it’s not supposed to be a training day and that we will likely ‘only’ end up at the gym.

In 30 something days we fly to Disney. I think I honestly have to say that for once I’m actually ready for a race (or three). I’ve been watching people post on their races from this weekend (WDW marathon weekend) and I’m so jealous. I never in my life thought I would be looking at a marathon racer and thinking… maybe…

It’s hard to believe that just about a year ago I was watching people run a RAGNAR on From Fat To The Finish Line thinking that I would love to be able to maybe possibly some day do that… but that I would never ever be able to get to the fitness level that they were able to do. I don’t know if I will ever be able to quite get THERE… but… maybe… But here I am, at goal weight (still… I weigh myself almost every morning just to make sure… and I need to lose at least 5 pounds before Disney to give myself a little buffer) and actually hitting a little better than the goal I set for myself for my races, time wise. Maybe I’m okay.

It’s been really stressful lately and I can tell that it’s been playing havoc with my body. A week out from my last infusion and I’m feeling way way more human (otherwise I wouldn’t even be considering a half marathon distance today) but my body feels off. I know that the stress is poking me in the ribs (literally). I have this interesting bump on my elbow. Six months ago my PCP told me it was just a little cyst and it would be fine. Except it’s gotten bigger… and it’s where I rest my elbow on my chair arms or my desk so it’s kind of problematic. So I engaged my Rheumy… who sent me for X-rays (nothing… duh… it soft tissue) who sent me to ortho… who said huh… PCP? Oh wait… I guess we can do an ultrasound and make you an appointment with our ortho-rheumy-surgeon…. it’s probably a cyst.

It’s not a cyst. It’s, apparently, a subcutaneous thickening without a discrete cyst. Not a cyst. Not an RA nodule. MAYBE this could be the result of irritation to the tissue… maybe… or maybe this pea sized lump in my elbow could be my imagination or something… who knows. I almost don’t want to go see the surgeon on Wednesday. I’m terrified at this point. There are things it could be. Surgery would mean 4 weeks no infusion, then surgery then two weeks more no infusion. It would be 6 – 8 weeks without orencia. I don’t know if maybe I just don’t want to keep the bump. The devil you have and all that… but I’m scared.

So yeah, stress.

And I have three races in about 6 weeks from today (half is 6 weeks from today, 10k from yesterday and 5k from Friday). Surgery doesn’t fit into my plans right now.

If something is really wrong, how will I take care of Bear? How will I hold my world together?

Just keep swimming

One day at a time

one breath at a time

For now, it will be daylight soon. Time to work, a little, on my playlists for my races… and pull together a backpack for my ‘run’… I need to get my Starbucks free for January coffee while I’m out… and take some water and some Milk Duds along for the walk. Wish me luck…

Love and Light
April
1/13/2019

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Fairytale challenge training… day 1

So, I’m following the Galloway training plan from the RunDisney site. 19 easy weeks to a 10K/half marathon.

Yeah okay

Easy peasy

I don’t usually get to do a mid week training run during the daylight. I typically run at about 4:30 am. It’s nice to see what I’m passing better.

It was in the 40s and bright and sunny.

It bodes well for the rest of training.

April

10/23/2018

Realizing how far you have come

I refuse to tell people that this is what to do… or this is what will work for everyone… because that is a bunch of hooey. Everyone knows that nothing works for everyone and what works for one person simply can not work for others.  It irritates me when other people do it.  I won’t.

That said… this is where I am this morning…

This morning I hit what my PCP suggests ought to be my goal weight. That means I’m about 15 pounds from my actual goal weight.  THAT means I, very soon, need to start going to the stupid Weight Watchers meetings so I can hit goal there and become lifetime.  I still resent the hell out of that little ploy, but it is what it is.  Yay Nestle…

In celebration I drank a cup of coffee with creamer as a morning treat.

Then I got ready for my run.

I started playing Pokemon Go as a way to see if I can do something distracting during my run.  Hatching eggs.  Unfortunately, the app calculates really badly… I can run 2.5 miles and not QUITE accumulate 1k distance in egg hatching.  But steps is steps and they eventually hatch.  I thought maybe that my fanny pack would count the distance better than my flip belt…  Turns out it didn’t… but… in the process… I had to put my fanny pack on.  This is the utility belt I had always used in races.  This is the utility belt I used before I started on my little weight loss adventure… and my little running adventure.  It fit.  The way the strap was… it fit… 6 months ago… it fit.

This morning when I put it on, this is what I found…. When I strapped around me and held the pack side… I could see my feet between my stomach and the bag.

OLYMPUS DIGITAL CAMERA

When I let go of it this is what happened!!!

OLYMPUS DIGITAL CAMERA

I have officially lost enough weight that my fanny pack needed to be VERY much tightened.  I was, suffice it to say, not only SHOCKED, but very pleasantly surprised.

Today, I adjusted my run/walk/run time so that I ran 30 seconds and walked 45 seconds… I did 2.37 miles this morning in just under 30 minutes.

It got me thinking…

When I first started running (2008… 2009… ish time frame) it was right before I was diagnosed with RA.  RIGHT before… I was doing pretty well… but I was no where near as quick or consistent as I am now.

My first several ‘runs’ I did in the middle of the darkness in the morning around our cul de sac.  I would leave our driveway, jog to the next driveway… make it to the end of the street… walk the rest of the way… and fall down into the yard.  I started adding a little distance.  I would go to the next driveway plus one sidewalk square.  Sometimes the next dandelion.  I worked my way using the First Day to 5K pod cast.

I eventually worked my way up to being able to finish about a mile and a half… run walk running… but I was doing it at about a 16 minute mile.

I finished my first half marathon two months after I was diagnosed with raging RA… 37 joints involved… inflammation everywhere…. My hips screamed the last mile.  I almost couldn’t make it into the house from the attached garage.

When I finished my first Disney half marathon 4 years later, I managed to stay ahead of the balloon ladies but not by much.  I half way trained.  My RA was kind of mostly controlled but I had just started on Orencia.  I was still on MTX.

I was determined to finish Disney…. and it was a personal best time for me.  It wasn’t a great time, but I finished it.

I was 218 pounds when we moved to Cleveland.

I refused to do the math on what that meant BMI wise.  I didn’t want to know.

That was 4 years ago.

February I started back walking very fast to train for Disney.

Then I read that for every 10 pounds weight loss you can shave off 20 seconds per minute off of your run time.  I was determined to get to a 14 minute mile so I could half way comfortably finish ahead of the balloon ladies and still get my picture taken coming out of Cinderella’s castle and maybe even with Goofy on the golf course.

So after my PCP told me that WW is the silver bullet and that I should only EVER eat 0 point foods, I got pissed and joined.  I was determined to make it work.

I needed to shave my time.

I needed to get healthier and stronger so I can help Bear as much as I can through everything that is to come. I need to be as strong as I can possibly be.  I need to be healthy enough to support him enough through everything.  It matters.

And here I am at 165 pounds… 15 pounds short of MY 150 pound goal…

The walmart leggings I started out running in stay MOSTLY up but slide down a few times during a 2 to 3 mile run.

People at work who haven’t seen me in a while have started to comment on how much weight I’ve lost.  I kind of look at that sort of in a hard way… I didn’t really think of how heavy I was.  I didn’t think about how I looked to other people.  I didn’t think… Now I think.

I’m down 4 pants sizes.  I’m running in between a medium and large pair of running leggings.

I don’t hurt as bad as I did before.  I don’t hurt as badly when I am nearly to infusion day.  My hands still ache some days and I still am stiff in the mornings but I feel less bad (does less badly equate to better?  I’m not sure).

And I’m starting to think of myself as a runner.

But it’s not all sunshine and roses in my own head.

Men have started to notice me… started to flirt with me.  There was a guy in Pittsburgh when Bear and I were waiting on the Gateway Clipper who bought pop corn and brought it over so I could help him feed the ducks.  It never dawned on me until Bear pointed it out later that he was flirting.  People rarely ever talk to me so flirting isn’t something that ever crosses my mind. My first thought was… I want very much to go back to being invisible and I should stop trying to lose weight.

But I like feeling better.  I like thinking that I might not need to be on some of the “you’re too heavy” drugs that I’ve been on for years.  High BP meds… cholesterol drugs…

So… yeah… it’s been very much a thinking kind of day… a day of how far I’ve come over the years.

Running isn’t for everyone with RA.  Knee damage, ankle damage, feet and toes… it seriously curtails what you can do with working out… but moving is a good thing and I’m convinced that weight watchers (much as I STILL hate trying to find the logic in stuff) and running have made an incredible difference and I know that I really really don’t want to go back to having a BMI of 36.  Goal for me is now a normal BMI… and making sure I’m around to help when Bear needs my help.

And… of course… doing races…

August … Rock n Roll Hall Of Fame 10k

October…. Towpath 10k
Pumpkin run in Akron

November… Made In America in Massillon Ohio half marathon

February…. Disney!!!

 

Love and Light

April

7/13/2018

Gallery

From Fat To Finish Line

I stumbled onto a facebook group called From Fat To Finish Line.  I figured that was kind of me… so I joined.  I didn’t read a lot… then I started to lurk.  I didn’t realize that “From Fat To Finish … Continue reading

Fear Factor… Reading Race Posts for the Disney Princess Half Marathon 2018

So… I’m feeling all hyped and at the same time apprehensive for the 2019 Princess Fairytale Challenge.  10k Saturday, half marathon Sunday… February 2019… Yesterday it became official… we booked through a travel agent for the challenge bibs, rooms, dining plan and park tickets for 10 days.  I’m actively working towards a goal completely terrified I won’t make it… but a goal none the less.

I’ve been eavesdropping on conversations on Facebook groups about this year’s race.  Some I can so totally relate to… some not so much… but it’s all information and it’s all good.

This morning I saw a post that stopped me dead in my tracks…

I had the flu but mostly recovered, did the 10k but the morning of the half had a sore throat and fever but I wanted to do it anyway but <ajw THANK GOD> couldn’t… found out I had strep….

I had the flu and did the 10k but couldn’t do the half…

okay…. pretend you are on the other end of that discussion ….

I spend an OBSCENE amount of money dumbing down my immune system. My body hates me and attacks itself if I don’t. I find any way I can to not touch things like tables in public places, elevator buttons, gym machines that inconsiderate ass holes use and hang all over and sweat all over the treadmill and walk away without listening to the signs saying that after you sweat all over everything wipe it off…. I am overly cautious and I’m overly cognizant of this kind of thing…. frankly because I have to be. I read posts DUMPING on inconsiderate people at the races who walk in the wrong places or jump into corrals where they don’t belong…. and then I read the posts that say that they have incredibly contagious diseases (in a year when a lot of people…people like me…. people like….oh you know… the little kids you’re around) from just these diseases. But I guess that contaminating the happiest place on earth is way less inconsiderate than all of the other stuff because it’s you?

Do I know there are people who don’t think… yeah. Do I know there are people who just don’t care, yeah. But as long as you are talking about entitled people being inconsiderate to you, realize the mirror works both ways.

Okay…

Rant over…

Coffee consumed….

Off to infusion time to dumb down my immune system some more…

Love and light

April

2/28/18

Gallery

Vicariously Being With the Princess Half Runners 2018

This gallery contains 1 photos.

It’s 2018 Disney Princess Half Marathon weekend.  I’m sitting at home near Cleveland with a shiny new pond in my back yard because of all the rain (but hey, it just means it’s almost spring, right?)… listening to my stupid … Continue reading