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Hello… I am a Person

Have you ever had one of those epiphany moments when you realize that some people are just… not great at people? I’ve been noticing this a lot lately (more an more in certain circumstances, to be honest…). The people who … Continue reading

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FALL!!!

Okay, it isn’t fall like fall at home, but it is finally starting to be fall.  It is Sunday… that means it is time for our walk… home to Walmart (today we bought alcohol and 2 inch gauze pads and … Continue reading

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Graces day 2 of 365

Today… these are easy… My “winter” barefoot sandals slash sandal/flip-flop cozies Cutting the grass in my bare feet and it feeling wonderful (despite the fire ants that I pissed off…) Home-made pumpkin spice coffee creamer The tree in the easement … Continue reading

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Attitude Determines Altitude

Okay… no always… Sometimes things just suck really bad and simply being Mary Sunshine doesn’t help.  BUT for the most part, you can alter your day by altering your choice of attitude to your day.  Amandya’s local analyst keeps telling … Continue reading

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A Brand New Mind Set…

Well, it is Friday afternoon…. okay, Friday evening. 30 days (outsourcing) is on Planet Green. I took a nap after my Dr appointment (I was up at 3 am stressing over the tummy shots). It has been an educational day. … Continue reading

Friday Morning Thoughts… The RA adventure continues

Sitting here… it is my pager comp time day off.  I’ve been awake since 3 am thinking… worrying… stressing (yeah… this will help the ouchies, more stress).  Peanut is asleep at the end of the bed, her fuzzy white legs twitching.  She’s apparently chasing the rabbits in her dreams, even though people who are able to see what dogs dream believe that can’t happen… whatever… she’s chasing her rabbits.

Today bear and I “get” to go to Dr Stephanie’s office to learn how to give me MTX injections.

In my head, I know that other people do this every day (like Vaughn used to before he got his insulin pump).  They are little needles.  Lots of people do it.

So why am I scared?  Why am I stressing?

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Spending Time With My Nook

I’ve been spending more and more time reading on my Nook. I know (in my head) that it isn’t the same as reading a dead tree book… and a lot of time it is more expensive buying digital copies of … Continue reading

Restasis

well… Here I am… Restatis and my second dose.  They come in “individual”  use package s… 30 uses in a box… 2 boxes a month.  The pharmacist said try to make one tube do both eyes and if there is any left in the package when you are done, throw it away (THROW AWAY $250 a month drops?  HELLO!!!!).  You put one drop (it ends up that it can be a BIG drop) in each eye.

The eye doctor said it usually burns (not like HIS drops burn… that is right away… these seem for me to be a slow burn that lasts about an hour… not an “ow ow ow” burn… more just like they are dry and tired anyway).  He said it will take at  least 3 to 6 months to work.  That is a long time… but then I think that MTX took almost 9 months to get me here… so it really isn’t that long…

The adventure begins.

This week I’m thinking so much more about how all of this really IS invisible to most people (with the exception of anyone who actually stops by here…).

My mom thinks I need to be WAY more visible (since there aren’t a whole lot of people who stop by here) and take up motivational speaking.  Maybe that is another door to look at…

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Left Foot Right Foot Feet Feet Feet

Today I was ‘warned’ via a team email that a big client will be in the office tomorrow.  We need to clean up our desks (line up my potato heads…. check… dust off my frames and shut the book shelf … Continue reading

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The Invisibilty Factor

Happy (I guess happy…) National Invisible Chronic Illness Week. Realizing that this is the week to make invisibility visible… I’ve been thinking about just how many people I know (or how many people I might know) who have invisible conditions. … Continue reading