Category Archives: Family

Aspergers Syndrome

Destiny…

I am the aunt of an incredible little girl… okay okay… she is a teenager and she will always be a little girl in brain… even though she is as tall as I am… get over it.  She really is her mother’s destiny.  Bless her beautiful person-hood… she is a wonderful girl.

A lot of people can’t get far enough through the Destiny-ness to learn just how wonderful she is.  She can be loud.  She is very direct… very direct.  She lives in a very black and white world (although, her world is very colorful) if you get what I mean.  She knows things… good heavens that child knows more about more things than I could ever hope to keep from leaking out of my brain.  We had the most animated discussion on capybara while we were home for Thanksgiving.  I think I surprised her by having seen one live (or mostly live… it was dying from rabies at the time).  Don’t know what they are?  Look them up.  They are fascinating creatures… they irritate the crap out of Bichons.

She has her idiosyncrasies (but, lord, don’t we all).  People, I know, have to make fun of her because some of hers are a bit visible.  I wish more people could get past the painfully obvious and take a chance on getting to know her.  She is one awesome chick.

I found out that they have finally been able to put a label on what she “has”.  Anyone who has stuck around nearby me for any length of time and not run screaming from the room knows that I am not a big fan of labels.   Yeah, I know… big shock, isn’t it.  But sometimes, a well placed label can make you stop… think… and go… OH… okay, I get it… And it can help you to stop, and think, the next time you are dealing with someone with a similar label (or the same person if you are lucky enough to have one in your life…) and take just a few extra minutes to help them to fit better in their own world.

What have I learned about what Destiny’s world is like?  The following is a really interesting analogy (maybe because I am a cube dweller) on what life is like in Des’s brain…  compared to a “normal” brain.  The website it’s from (Hover over the title) is Weird not Stupid

What is Asperger’s Syndrome?

 

In order to better understand Aspergers Syndrome, an analogy can be used. Imagine an office containing several cubicles and a hallway down the centre. This represents the two hemispheres of the brain. In the majority of the population, information flows freely between the cubicles on either side of each other as well as with the cubicles on the other side of the hall (exchanging of information from the left side of the brain to the right side and vise versa). In this scenario, each cubicle has a working computer, fax machine, telephone, filing cabinet and bulletin board as well as the ability for each worker to step into another cubicle to talk to a co-worker. That is how information flows in most people’s brains.

In someone with Non-verbal Learning Disorder or Asperger’s, and in some cases of Autism, the office is there, all the workers are there and the information is there as well. The difference is that some of the cubicles don’t have phones, but have fax machines instead. Some of them don’t have e-mail, but have information on that computer. Some of them can only fax their information, which is on paper in a filing cabinet that is not in alphabetical order, but rather in chronological order. 35% of them have boxes stacked up in front of their cubicles, so they can’t get out. That means not only does it take longer to find information, but it also takes longer to compile it, process it and transfer it to the place that it is needed. Add to that the fact that each person has more than one boss, giving them different objectives. If you worked in an office like that, you would dread going to work everyday. That’s why it’s important for us to change some of the things we do to make it more bearable for someone with Asperger’s.

 

Also on this website is a bunch of characteristics of someone with Asperger’s… again… it made me go OH… okay…

Now… my next goal (Wait for it… wait for it… here comes another flag to have in the air) is to start writing letters to this precious person so I can be as much in her life as I possibly can.

Happy Sunday

Gallery

Christmas Stockings…

This gallery contains 1 photos.

Okay… first, let me thank Kaitlin of Kaitlin’s Cauze for pushing me gently down this road.  I am actively chasing a purple hoody that is the prize for her ongoing trivia contest.  Her blog is here… Mostly she is all … Continue reading

Gallery

Coffee…

Coffee has been a part of my life for as long as I can remember, literally.  Not that I drank coffee all the way back…but it was always in the house… it has been a part of everything. Momma always … Continue reading

Coffee, Quiet, and doing the Needful…

It is a quiet morning.  Yeah, Yeah, it’s 6:30 and I’ve been at this an hour… but it is a quiet morning anyway.

I got up and made coffee (now I am going to be drinking either iced, or at least cooled coffee while my tongue and roof of my mouth heal from yesterday’s holy crap fiasco at work… Where is my “stupid” sign) and pulled up my laptop onto the comfy couch and started moving (copying) Adam’s poetry off of Facebook (where noone will see them because he really doesn’t have many people he has friend-ed and some of the ones he has have gone by the way side… to where they can be seen by the world.

Anyone interested in a brand new take on the world, some interesting poems, and some deep thoughts on himself and the world… his new blog is Malshaunt “Snow” Delinarian’s Poetry Blog.  I was worried that he would be upset with me for putting it out there where people can see it, but I know that he wants people to read and think (and even comment…) on his poetry.  He’s had some run ins with people who are 1. poetry snobs… ones who only like THEIR poetry or ones who don’t like anything that doesn’t rhyme… and these are the people in poetry club… 2. people who don’t understand him or who look at him and think he can’t be a poet, he doesn’t look like one.  Now he is a little gun shy on putting himself on the line.

He wasn’t upset though… he was actually excited and wanted to know how long before people start reading his stuff (14 did yesterday and I was only one of them when I was making sure that the blog actually worked).

Sometimes I feel like a total wash up as a parent… sometimes not so much.  This morning (I’m so glad that my hands aren’t hurting the way they did yesterday and the only ouchies are from yoga and stretching) I’m doing something that makes me feel like an adequate parent.

Happy Friday.

What a Week… It’s Finally Saturday… No Wait… Sunday

It has been an amazingly long and reasonably bad week… but the ending isn’t SO bad (except for the computer part)

Monday was supposed to be work from home day… and my laptop crashed… Hurry up and bath quick, get dressed and haul my butt into work… laptop toast… fixed by Wednesday at the latest.  Okay… cool beans… pager duty starts Thursday so that isn’t bad.  Figured by the way I felt I was coming down with a UTI and was trying to stay mellow and drink lots of water and lots of green tea and cranberry juice…

Tuesday… didn’t feel quite right in the morning but that isn’t overly unusual…. face it… I wake up every day feeling just a little off.  Went to work… actually made some progress… Lunch time I was feeling crappier and decided (rather than LISTEN to my body… duh) to ride the stationary bike at the gym… NOT a great idea… shower… feeling worse and worse… back to work… by 1:30 EVERYTHING hurt.  Welcome to an infection with an auto-immune disease.  LORD this was awful.  It felt like someone had beaten the crap out of me with a baseball bat…. repeatedly… everywhere.  Packed up and went to the car (where I slept in the parking garage for about an hour) and drove home… where I went to sleep and slept until the night got full of raised voices and unhappy people… REALLY didn’t feel like diffusing an argument but I’m really really really glad I did.  I’m also not glad I did because I could have done without some of what I found out… but… hey… you take the good with the bad.  I understand WAY more now than I did before and I think it will end up being a better thing.  The nicest thing was… I got my laptop back from the help desk so I had it in case I needed it.

Wednesday… woke up throwing up… great… worked from home (on the back porch) so I didn’t have to get up and RUN to the bathroom every half hour… A trip to the store for easter candy (I’m so glad I have weird kids who still… at 15 and 18… want to find baskets and hunt eggs… and dye eggs…) and back to work.  It felt so good working on the back porch and I get so much more done when there are fewer interruptions.  I know that isn’t logical (supposed to get more done when they can watch you work) but it is (in my case, at least, true… I get more done because I can put in a concentrated effort and I actually end up working longer AND smarter when I can do it my way… but I’m not a type A or anything… )

Thursday… get the pager… OH BOY!!! eesh…. and Yoga class.  Yoga is SO helping me.  I absolutely love the lady that runs BeaLoveYoga and I want them to keep allowing us to have class at lunch time.  It helps so much… especially when I don’t have to get in the car and haul my butt half way across town (or worse) to attend a class….

Friday was SUPPOSED to be a work from home day… computer crashed again… great… in to work to do my clone (sometimes I love E-Business suite… sometimes not so much).  BUT I got the clone done on time and even ahead of schedule and my computer was back by 1.  I figured I was set for the weekend of pager duty.  DON’T ever assume computers are going to work.  Skinny butt went out with his friends and got back late late.  Making sure he was okay (THIS kid SO can’t drive safely… even on a good day… he scares me)… finding out that 10 MTX sucks and trying to stop the world from spinning.

Saturday (when I actually started this) was a really good day.  Busy but good.  Walked to HEB… colored eggs.. put up 2 tents in the back yard (and actually slept in them)… went swimming (even the coldish water was nice after you got in and moving)…   Sleeping in the tent was great.  Went to sleep listening to trains and traffic down on the big road and an owl somewhere out back.  I usually sleep to inane TV programs that are white noise.  I was PLANNING on falling asleep to music on the computer… I turned it off and just listened.  It was chilly and damp, but Amandyal came out to sleep with me and Peanut came out to sleep with me and it was all good.

And this morning… a cardinal is sitting outside the kitchen window on the fence singing… Amandya is sitting on the floor in the living room with her basket laid out on the floor (surrounded by the wet blankets from the tent) listening to Letters From Home and looking at pictures.  Things have started to really matter to her.  Waking up to rain dripping off the roof and filling up the tent was nice… Waking up to my stupid work laptop being messed up again wasn’t so great… but I got to play hide the easter basket and hide the eggs again which is really good.

My arm hurts a 12 this morning because of the rain but I expected that…

Now… to bake a ham

Gallery

Simply Yoga: What I am Not

Yesterday I went on adventure.  Okay… it was a LITTLE adventure, but it was fun and it was something I had wanted to do for quite a while. I went to the library. Not the one I usually go to… … Continue reading

RA can contribute to pregnancy problems… hmmmm

I have read, several times over the last few days, the article here on how women with RA seem to have a higher rate of pregnancy complications.  My rheumy told me that miscarriages can be connected to RA, and this article explains that low birth weight.

It makes me go… hmmm

It might help explain both kids being several weeks early and both kids being light for gestational age… not sure if it really could, since I had kids 18 years ago and 15 years ago… and RA was diagnosed 4 months ago (wow.. been an eventful 4 months)… but it makes me wonder.

Feeling Positive

A positive feeling is a good thing.  Today, after an ENTIRE weekend off from work, I’m feeling very good.

This past week (2 weeks really) were bad because I was on pager patrol and putting in boocoo hours.  Even though, I tried on some Capri pants at the second hand store and realized that, when I’m in a bad mood I totally believe that I look like a hippo.  Mirrors are not your friend… especially when you are tired.  I got totally disgusted and left.  Maybe next year I will be willing to buy a couple pairs of second hand Capri pants… this year I will stick to jeans and khakis.

BUT…

I have run several times in the last week… and I did weights on Thursday.  Yesterday we walked to HEB for koolaid and jelly and chewy bars.  Today we walked to next to walmart for  small one’s orthodontist appointment.  Yesterday afternoon I swam.  This afternoon the kids and I walked down again to swim.  Swimming always makes me feel good and it always tires me out a lot.

Squirrel got a sun tan.  MPOG got a burn on his neck (he swims in his t-shirt).  I got a bit red where my tank top didn’t cover and where my swimsuit didn’t cover.

Swimming made me feel even better.  The LAST last swimming suit I bought (not the newest one… it has big blue flowers and a skirt… but the one before that) fits again and doesn’t make me look massive.  Maybe I don’t look like I used Jenny to loose lots of weight so I want to parade around in a little suit, but I feel like I don’t match shamu when I swim and my splash wouldn’t drench the first 10 rows.

Tomorrow, it is back to realiity.  I want to get up and run (and I feel like I probably will) and maybe workout at lunch time.

Podrunner Intervals Day 1 to 5k week 9

It was a rabbit kind of morning again!!! When I left the driveway this morning, it was really foggy… the pretty, heavy kind of fog that makes all the sound feel weird. The street lights were all misty and looked like they were a million miles away. This means it was a humid morning (duh). It might not have been the best morning to go from week 8 to week 9 and right now my body isn’t thrilled with me.

I did dumb things this morning. I added the extra time for week 9, and I tried to speed up my workout at the same time. In short order (okay, maybe it took me longer than usual, but I’m not always the most patient person in the world) I figured out that today wasn’t the day to put in the extra faster runs (street light to street light).

I almost caved in and gave up early (15 whole minutes left on the podcast) but just as I topped the next to the last hill, a wind blew in and it felt so good… it gave me my second wind and I pushed through. Now (60 sun gods and 10 pushups later and a good stretch after everything) I’m sitting here, still a bit sweaty, drinking my water and feeling a bit proud of myself.

We were at Walmart yesterday picking up way too grown up son’s birthday cake and I went to the pharmacy to check my blood pressure and pulse rate. 118/80 (not bad) but my pulse rate was 92 (didn’t like that one)… I need to figure out what kind of workout I need to do to bring that down.

Now… a shower and Oatmeal and then back to work…

Have a marvelous day!

Figment