Category Archives: Family

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January

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Good grief, it is already/only half over.  I’m exhausted this year by the sheer weight of January.  It’s been a long few weeks… but it is high time to start getting back to the me I need to be. SO… … Continue reading

Finally Feeling Human!!!

So, here I sit.  Disney Christmas Music playing on YouTube and the smell of a gas station hot dog eminating from my coworker’s desk making me feel like I want to vomit.  I finished my third glass of water (this one with FIZZ grapefruit electrolyte replacement in it).  I think now is a great time to pull together my “holy crap it’s getting to be nearly time to worry” post for the Disney Half Marathon.

For starters, I’ve been preaching at Amandya to work on HER blog about her volunteer teaching in South Africa helping work through things in her mind and through planning and passing the time.  I guess practicing what I preach is probably a good idea.

I signed up, today, at work to join our company partially funded Gold’s Gym Membership.  It’s probably still more expensive than I should be really doing all things considered, but it is close to work (and frankly close to everywhere) so I can run over at lunch, even when I’m on pager patrol, and get in some workout time.

It won’t be all of the training that I need, but it will certainly help.  I know having that helped before and I know it can’t hurt.  It’s horribly warm out when I can be out walking at lunch and I don’t want to make myself sick.

This trip was kind of stressing me out a little before.  When I signed up, I thought I wouldn’t care so much that I was going to have to deal with the adventure on my own.  I was wrong.  I was stressing.  Being ALONE with a half marathon half a country away from anything resembling people or places of home… not the best feeling in the world.  And the advice to try to get people who were from around here to admit to running Disney was an even bigger joke.

Now, though, it looks like this is going to be an incredibly wonderful trip.  We are not only all going, as a family, we are making it an extended family adventure and taking grandkids and all kinds of stuff along with us.  It’s going to be a truly magical adventure.

I’m actually feeling like I’m going to be up for this challenge because I’m looking forward to it so much.  I’m determined to make this a magical adventure for the kids (big and smallish) and bringing really lasting memories to everyone.

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Night Creeps In

I’m sitting on the bedroom floor. Tv turned way quiet. Blankets and my trusty afghan piled around me. I’ll bet she never dreamed those years ago when she crocheted it all together how much use it would get… How much … Continue reading

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Ah Elusive Sleep…

Up and not able to fall back asleep at mumblemumble o’clock in the morning… My mind races… my wrist is tender… my toes and fingers ache.  I’m thinking taking one of the post-op percocet would be wonderful, just to help … Continue reading

More Than Face Value

Do you have someone in your life that people tend to take one look at and make snap judgments about?  Someone who is one of the most amazing people… but who put people off because he looks just a little different and walks to his own drummer…?  I hesitate to call him a black sheep because 1. that is cliche and he is SO not cliche… 2… heck I’m one of the family black sheep, woooo… 3… he TOTALLY is not a sheep… that is an incredibly big thing with him.

He is such a good kid.  He is an incredible person.  He is artsy fartsy.  He reads and plays the violin and this is him with his favorite ‘thing’ in the whole world.  People tend to look at least twice when he is dressed in his big long duster, his black fireman boots, his black hat… looking morose and withdrawn and the dog (peanut) comes running up to him and his face transforms into the most beautiful smile!

He is getting up at 4 am to haul his butt into ‘town’ with me for the half marathon.  He isn’t going just to cheer me on.  He has figured out that he loves to volunteer at the event.  This year he is handing out half marathon medals.  I have a goal… to make my best time quickly enough to have him hand me my medal.  I won’t make it… but it means a lot that he wants to be there with me.

He looks out for his sister.  He is the first one to make fun of her when she deserves it (and lord knows sometimes she deserves it) but he is the most viscous in her defense when it matters… and it matters.

I also have, in my family, at least one person… actually more than one… who tend to dwell a lot on appearances.

I’m pretty sure that I’m not really high on the list of at least one of them.  I get birthday phone calls (sometimes actually on my birthday) and the first words are either about them or about wishing them happy birthday… When I get a phone call it is usually to tell me about the wonderful things that they are doing for their charity or in their lives.  When I get an email it is to ask for me to support…. this or that… never ever to just say hi.

Today I found out today that they actually are impressed with my kid.  I’m proud of him… he really is a good kid… but to know that they think he is a good kid is such a wonderful bounce to my heart… it gives me hope…

He shrugs it off… but it wonderful to know that there are people who live by appearances who think he is a good thing.

YAY!!!

Girls Day Out

I’m not entirely sure I like the day after Christmas shopping… it is… kind of… nutsy.  Parking is a nightmare.  People are crazy.  Lines are horrendous… and it was probably one of the best days I have ever spent.

Amandya didn’t ACTUALLY get up for my 5:30 Walmart excursion.  She didn’t ACTUALLY make it out of bed until almost 11:00.

She wasn’t thrilled about getting out of the house.  She doesn’t really “do” people even on a good day and she has been a bit on the moody side the last few days.  But I knew getting out would do her good… and she had several gift cards and Christmas cach that needed using so off we went.

Rue 21 at the outlets she got T-shirts

Disney store at the outlets I got a double Dry technical shirt with mickey on the sleeve.

Journey… socks

off to Target to see if I could find the Disney CD for half of… and of course by after noon it was all gone.  sigh…

Barnes and Nobel… calendar and journal… and a for dummies book for the squirrel…

Walmart (again?  yeah, different one) so she could buy herself a mini-fridge and I FOUND MY SOAPS!!! wooohoo… I didn’t think I was going to find them but I did.  and another doggy toy for peanut.  On our way back to the car, Squirrely was trying to conserve energy (yeah… she’s a little nut) and hopped on the front of the cart and I pushed her butt to the far end of the parking lot, up hill, laughing the whole way.

It really was a girls day out.  Adam was playing WOW and Runescape (something about a crab hat that has a santa hat on it… not TOTALLY sure… ) and Bear, Ron and Angela stayed home hanging.  Bear took down all of the outside Christmas decorations so they don’t get wet again… sliced open his finger and really made a mess of it all… but they are away and the yard looks naked… sigh…

Pizza for dinner. and now just… hanging out… watching Gandalf the Gray getting snowed on.

A decidedly wonderful day.

Aspergers Syndrome

Destiny…

I am the aunt of an incredible little girl… okay okay… she is a teenager and she will always be a little girl in brain… even though she is as tall as I am… get over it.  She really is her mother’s destiny.  Bless her beautiful person-hood… she is a wonderful girl.

A lot of people can’t get far enough through the Destiny-ness to learn just how wonderful she is.  She can be loud.  She is very direct… very direct.  She lives in a very black and white world (although, her world is very colorful) if you get what I mean.  She knows things… good heavens that child knows more about more things than I could ever hope to keep from leaking out of my brain.  We had the most animated discussion on capybara while we were home for Thanksgiving.  I think I surprised her by having seen one live (or mostly live… it was dying from rabies at the time).  Don’t know what they are?  Look them up.  They are fascinating creatures… they irritate the crap out of Bichons.

She has her idiosyncrasies (but, lord, don’t we all).  People, I know, have to make fun of her because some of hers are a bit visible.  I wish more people could get past the painfully obvious and take a chance on getting to know her.  She is one awesome chick.

I found out that they have finally been able to put a label on what she “has”.  Anyone who has stuck around nearby me for any length of time and not run screaming from the room knows that I am not a big fan of labels.   Yeah, I know… big shock, isn’t it.  But sometimes, a well placed label can make you stop… think… and go… OH… okay, I get it… And it can help you to stop, and think, the next time you are dealing with someone with a similar label (or the same person if you are lucky enough to have one in your life…) and take just a few extra minutes to help them to fit better in their own world.

What have I learned about what Destiny’s world is like?  The following is a really interesting analogy (maybe because I am a cube dweller) on what life is like in Des’s brain…  compared to a “normal” brain.  The website it’s from (Hover over the title) is Weird not Stupid

What is Asperger’s Syndrome?

 

In order to better understand Aspergers Syndrome, an analogy can be used. Imagine an office containing several cubicles and a hallway down the centre. This represents the two hemispheres of the brain. In the majority of the population, information flows freely between the cubicles on either side of each other as well as with the cubicles on the other side of the hall (exchanging of information from the left side of the brain to the right side and vise versa). In this scenario, each cubicle has a working computer, fax machine, telephone, filing cabinet and bulletin board as well as the ability for each worker to step into another cubicle to talk to a co-worker. That is how information flows in most people’s brains.

In someone with Non-verbal Learning Disorder or Asperger’s, and in some cases of Autism, the office is there, all the workers are there and the information is there as well. The difference is that some of the cubicles don’t have phones, but have fax machines instead. Some of them don’t have e-mail, but have information on that computer. Some of them can only fax their information, which is on paper in a filing cabinet that is not in alphabetical order, but rather in chronological order. 35% of them have boxes stacked up in front of their cubicles, so they can’t get out. That means not only does it take longer to find information, but it also takes longer to compile it, process it and transfer it to the place that it is needed. Add to that the fact that each person has more than one boss, giving them different objectives. If you worked in an office like that, you would dread going to work everyday. That’s why it’s important for us to change some of the things we do to make it more bearable for someone with Asperger’s.

 

Also on this website is a bunch of characteristics of someone with Asperger’s… again… it made me go OH… okay…

Now… my next goal (Wait for it… wait for it… here comes another flag to have in the air) is to start writing letters to this precious person so I can be as much in her life as I possibly can.

Happy Sunday

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Christmas Stockings…

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Okay… first, let me thank Kaitlin of Kaitlin’s Cauze for pushing me gently down this road.  I am actively chasing a purple hoody that is the prize for her ongoing trivia contest.  Her blog is here… Mostly she is all … Continue reading

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Coffee…

Coffee has been a part of my life for as long as I can remember, literally.  Not that I drank coffee all the way back…but it was always in the house… it has been a part of everything. Momma always … Continue reading

Coffee, Quiet, and doing the Needful…

It is a quiet morning.  Yeah, Yeah, it’s 6:30 and I’ve been at this an hour… but it is a quiet morning anyway.

I got up and made coffee (now I am going to be drinking either iced, or at least cooled coffee while my tongue and roof of my mouth heal from yesterday’s holy crap fiasco at work… Where is my “stupid” sign) and pulled up my laptop onto the comfy couch and started moving (copying) Adam’s poetry off of Facebook (where noone will see them because he really doesn’t have many people he has friend-ed and some of the ones he has have gone by the way side… to where they can be seen by the world.

Anyone interested in a brand new take on the world, some interesting poems, and some deep thoughts on himself and the world… his new blog is Malshaunt “Snow” Delinarian’s Poetry Blog.  I was worried that he would be upset with me for putting it out there where people can see it, but I know that he wants people to read and think (and even comment…) on his poetry.  He’s had some run ins with people who are 1. poetry snobs… ones who only like THEIR poetry or ones who don’t like anything that doesn’t rhyme… and these are the people in poetry club… 2. people who don’t understand him or who look at him and think he can’t be a poet, he doesn’t look like one.  Now he is a little gun shy on putting himself on the line.

He wasn’t upset though… he was actually excited and wanted to know how long before people start reading his stuff (14 did yesterday and I was only one of them when I was making sure that the blog actually worked).

Sometimes I feel like a total wash up as a parent… sometimes not so much.  This morning (I’m so glad that my hands aren’t hurting the way they did yesterday and the only ouchies are from yoga and stretching) I’m doing something that makes me feel like an adequate parent.

Happy Friday.