This was posted in a group I’m on on facebook. I went hunting and found it here as well (and found out that it can be shared with attribution) What RA Is Like: A Letter For Family and Friends … Continue reading
Category Archives: pain
So, here I sit, January 2, 2012 looking back and looking forward. I’m trying, this morning as I wait for coffee to finish so I can warm my cold achy hands around the cup, to decide if there is anything … Continue reading
I’ve been told that I’m the happiest person that people know. I’m always chipper. I’m always in a good mood. I keep thinking about that comment. I keep thinking about the way I hear other people talking. I keep thinking … Continue reading
Woke up this morning to the wonderful music of rain on the side of the house. It had been so long (months) since we had any really appreciable rain and we have needed it so desperately. We currently are looking … Continue reading
I have been thinking about a post I read on a Facebook group this week. Someone with RA was told that they should do Yoga. I’ve been thinking this week. I have taken the corporate offered Yoga class for the … Continue reading
I was reading through some RA places (blogs, medical sites, general… stuff) this morning and thinking, at the same time, about some advice I gave someone I met on facebook (who said social networking and general game playing don’t have any side benefits…) who is new to the “adventure” (sarcasm implied) of rheumatoid arthritis.
This young woman has a young son who has epilepsy (again… go go social networking…) which is again how we started to interact. She is going (hopefully) to see her arthritis doctor (not sure if it is a rheumy or not) soon, but was having an incredibly horrible flare last week. She asked what she can do for the pain.
I gave her all of the tricks I’ve found (over the counter NSAIDs… hot bath… slink to keep weight off the painful shoulder… use other joints where you can, like open bottom cupboards with feet and shut doors with hip if it is shoulder-elbow-hand pain… oh… and… um… yeah… I had a package of metho-prednisone that the clinic prescribed for sore throat a while ago that I didn’t take many of, you know the ones, the blister packs that have the dosage on the back, if I get really really bad, I take a couple doses of that to try and take the edge off). Yeah yeah, I know… but technically it was my prescription I was taking and it isn’t like I haven’t been given the magic prednisone pills before. There are times that you do what you have to do to keep from living the chewing glass kind of pain.
One of the best pieces of advice, though, that I think I gave her (and advice that I probably ought to take myself more often) is to be gentle with yourself, be understanding of yourself, and don’t just let people help if they offer, ask for help.
So that was the avenue I took down the… I’m up early, it is blissfully quiet but for the wind and the trains, I have warm coffee with cream, and I’m looking for research to help me with my RA book… rabbit trail. I found some interesting takes on my theme. Some make me cringe (especially given that my hip hurts about a 9.5 this morning from the change in weather) but in general they were good reads.
The Allegheny Medical Blog has some great suggestions, but not really if you are in the middle of the chew glass kind of pain… and most of it is kind of common sense, this is what will make you healthy, wealthy and wise kind of suggestions. I always like to be reminded that stretching and gentle yoga can help and mindfulness of my own limitations lets me do this even when it hurts really bad and sometimes helps, but that isn’t something to actually take up when you are in the middle of “what the #@$$ can I do for this pain” kind of day. And actually the 7 Fibromyalgia Coping Tips entry was more helpful and kind of more accurate.
I think, though, that one of the best pieces of advice is from Rheumatoid Arthritis Guy… Asking For Help Does Not Mean Giving In. I guess it isn’t just a girl thing that says… I’m going to tough it out.. I’m not asking for help, they should know I need help… or… I do NOT need help. Let’s face it world, we all need help. Don’t be afraid to accept it. Don’t be afraid to ask for it. I absolutely love RA Guy’s blog. It is real. It is honest. It makes me have faith that I can do it even on my crappiest day.
And damn it, it isn’t just about RA, but every freaking thing in life. Get over yourself. Help someone, even if you don’t realize they need it. Offering makes the heart smile.
I knew starting out this morning that it was going to be a not great day and (whether it was because I was looking for it to be less than great or because it was just less than great) I … Continue reading
I was wasting time this morning waiting for my work computer to load and be all happy and I found this in RA Warrior’s listing… The Goal Is Not Perfection. Don’t give up the things you love… It is linked … Continue reading
Happy (I guess happy…) National Invisible Chronic Illness Week. Realizing that this is the week to make invisibility visible… I’ve been thinking about just how many people I know (or how many people I might know) who have invisible conditions. … Continue reading
Okay, well, it sounded like a cool title.
Today is International Purple Day… a day to raise awareness of Epilepsy world wide. It was started in 2008 by a nine year old girl in Nova Scotia. SHE is an inspiration…
Last night, I went to the Round Rock City Council Meeting to accept the Proclamation of Purple Day in Round Rock Texas. It meant a lot to me and I really don’t know why… other than this town actually took the time to respond to my email campaign and to reach out to its citizens…. it mattered.
Before the meeting, the Mayor came and introduced himself to me. I’m impressed by our mayor. He has a good handshake… not the I’M A MAN WINCE BEFORE ME kind of handshake that I have come to fear (heck, I fear a lot of handshakes… but those are the worst on my knuckles)… not the oh… you are a girl… I will be weak and patronizing kind… those are easier on the knuckles but not on the self esteem…. he had a gentle warm and welcoming hand shake.
And purple tie! It made me smile.
This morning I got an email from the news paper wanting to do an interview (okay… it is a weekly paper with a limited distribution, but it IS a newspaper… and it will help get the word out). I know there will be a photographer and the reporter. Okay, the reporter is female, which means the hand shake will be less intense. Not sure about the photographer.
I pride myself on my handshake. I refuse to wince. I refuse to have a wimpy handshake. I know that I base a lot on the way someone shakes hands and I figure other people do too.
SO today, I am bowing to the patron saint of naproxen sodium. I don’t hurt badly enough to take the anti inflamitories (even though my knuckles probably could use the help… something is up with some extra stiffness and extra achey-ness… ). I think the little blue pills (not the tiny blue pills… the ones in the stomach yukky isle… those are for other purposes…. grin) but the little bright blue pills that make the hand shakes magically not so bad.
This is important.
As much as RA matters to me because it is personal and it is mine and I’m trying to live with it and embrace what I can do and what I can affect… Epilepsy matters more because she is my kid and it matters.
Happy Purple Day.