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When Everything Changes

So, I’m working on a trip report from this time at Disney. Honest, I really am. Things have gotten hairy the last week and I’ve not gotten to where I need to be. But it is coming. In the mean … Continue reading

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Oh for convenience sake

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I get it… I really actually do. Hotels need to save that extra $2 a room that they probably spend a night on things like individually bottled shampoo, individual soaps… whatever. They usually couch it in such a way that … Continue reading

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It’s The FinalStraw!

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So, Back umpteen months ago, I saw something on the neatest kickstarter thing I had ever seen (given the fact that I look in terror at dirty restaurant tables, pop machines, silverware, elevator buttons and door knobs) . FinalStraw, by … Continue reading

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Spibelt fits perfectly now

Doing Disney 2019

Five years ago

So… In just a short time, we will be heading out and doing Disney. No, not today, but frighteningly soon (Squirrel and I looked yesterday at the Run Disney page and saw how close the race weekend is). It’s hard to believe it’s here already. It’s hard to believe how much things have changed in such a short time.

Life is short

It’s prompted me to look back at the past year that I’ve been working on getting more healthy, getting more fit, improving my time. It’s been quite a year and I can’t believe that it’s already almost here.

This year, I’m making a concerted effort at capturing the entire trip (good, bad, indifferent, scary, ugly, whatever) because… well… because.

This year we will be doing Disney differently in a few ways.

  1. Bear is handicapped. He’s renting a scooter instead of trying to fly his scooter to Florida. I’m INCREDIBLY happy that he’s made this decision. It’s going to make the airports a little less elegant, but it’s going to be less stress making sure the scooter is safe. We ordered Oxygen to be delivered to the hotel. So he’s not going to have to carry his big blue monster with us. He will have his portable and with the scooter, that should be good. He never thought he would make it to Disney when we booked this trip 11 months ago. I am glad he was wrong.
  2. I’m doing this trip as Lifetime on Weight Watchers (WW). This is going to be most interesting. I sucked it up this morning and bought a travel scale. It fits in a backpack and weighs very little. I’m determined that, when I get back from vacation, I’m not going to have gained much if any weight. Given that my next infusion is my last infusion for at least two months, I really really can’t afford to gain much while we are away. I will gain enough from not having my infusion for that long. I really hope the surgery on my weird elbow lump is worth it.
  3. Three races in three days.

So, I’m planning on chronicling everything as we go. I’ve spent so much time digging and digging for information, I want to be able to pull together what I’ve discovered with what I learn so I have one place for it to be.

Spent yesterday (most of it) packing. I will spend a good chunk of today packing and repacking as well. I want to travel with the least amount of stuff as I can. We always take too much and I know that I already have too much packed. I’m so used to packing for any eventuality and there are so many unknowns and eventualities this time. I need to pare it all down so I know we are good… and still don’t have to pay a billion dollars on overweight bag fees.

I will probably repack ten times. sigh…

I’m up for this (kinda)

I know we can do this (sorta)

Love and Light
April
1/27/2019

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An A$$H0le lives here…

Checked in at my Ww studio this morning. Now that I’m lifetime I only “have” to check in and weigh once a calendar month. I haven’t missed a meeting yet. It’s good to be talking to new friends I’m making. … Continue reading

Thirty Something Days Until Vacation

It’s January.

It’s snowing very lightly. It’s 26 degrees Fahrenheit .

Sorcerer Radio is on my my Echo (I really really want to thank my boss for not getting me a gift card this year. I’m in love with Alexa).

Coffee is… well… everywhere…

Gym is done for the day yesterday (I clocked 7 miles on my “I need 4 miles today” training schedule… today is 11.5… yay). If I follow my Google Pedometer plan, I’ll hit 13.3. Next Sunday the high is supposed to be 18. I’m really really really glad it’s not supposed to be a training day and that we will likely ‘only’ end up at the gym.

In 30 something days we fly to Disney. I think I honestly have to say that for once I’m actually ready for a race (or three). I’ve been watching people post on their races from this weekend (WDW marathon weekend) and I’m so jealous. I never in my life thought I would be looking at a marathon racer and thinking… maybe…

It’s hard to believe that just about a year ago I was watching people run a RAGNAR on From Fat To The Finish Line thinking that I would love to be able to maybe possibly some day do that… but that I would never ever be able to get to the fitness level that they were able to do. I don’t know if I will ever be able to quite get THERE… but… maybe… But here I am, at goal weight (still… I weigh myself almost every morning just to make sure… and I need to lose at least 5 pounds before Disney to give myself a little buffer) and actually hitting a little better than the goal I set for myself for my races, time wise. Maybe I’m okay.

It’s been really stressful lately and I can tell that it’s been playing havoc with my body. A week out from my last infusion and I’m feeling way way more human (otherwise I wouldn’t even be considering a half marathon distance today) but my body feels off. I know that the stress is poking me in the ribs (literally). I have this interesting bump on my elbow. Six months ago my PCP told me it was just a little cyst and it would be fine. Except it’s gotten bigger… and it’s where I rest my elbow on my chair arms or my desk so it’s kind of problematic. So I engaged my Rheumy… who sent me for X-rays (nothing… duh… it soft tissue) who sent me to ortho… who said huh… PCP? Oh wait… I guess we can do an ultrasound and make you an appointment with our ortho-rheumy-surgeon…. it’s probably a cyst.

It’s not a cyst. It’s, apparently, a subcutaneous thickening without a discrete cyst. Not a cyst. Not an RA nodule. MAYBE this could be the result of irritation to the tissue… maybe… or maybe this pea sized lump in my elbow could be my imagination or something… who knows. I almost don’t want to go see the surgeon on Wednesday. I’m terrified at this point. There are things it could be. Surgery would mean 4 weeks no infusion, then surgery then two weeks more no infusion. It would be 6 – 8 weeks without orencia. I don’t know if maybe I just don’t want to keep the bump. The devil you have and all that… but I’m scared.

So yeah, stress.

And I have three races in about 6 weeks from today (half is 6 weeks from today, 10k from yesterday and 5k from Friday). Surgery doesn’t fit into my plans right now.

If something is really wrong, how will I take care of Bear? How will I hold my world together?

Just keep swimming

One day at a time

one breath at a time

For now, it will be daylight soon. Time to work, a little, on my playlists for my races… and pull together a backpack for my ‘run’… I need to get my Starbucks free for January coffee while I’m out… and take some water and some Milk Duds along for the walk. Wish me luck…

Love and Light
April
1/13/2019

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Stress… change… parties… doctors… and taking a deep breath

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O-Dark-Thirty… listening to iHeart radio on the Echo Dot my boss got me for Christmas. I was kind of looking for a gift card, but I’ve decided I really like this option better. I don’t have to use my phone … Continue reading

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Happiness Tree

Yes, we have had our Christmas tree up since September and decorated since October.  Yes, judge if you will but Bear wanted to enjoy it as much as he possibly can this year because he knows (and until you KNOW … Continue reading

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You Might Be An Asshole

I live in a town where they pick up (think garbage truck with a HUGE vacuum hose) leaves every fall.  You are supposed to put your leaves in a pile on the tree lawn (the grassy area between the sidewalk … Continue reading