Category Archives: Journalling

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On Putting Off Diagnosis/Treatment

Sitting in the quiet, early morning dark… hot coffee keeping me company.  This morning’s Sunrise Earth is balloons over the New England states.  I’m homesick early this year…I really want to sit and have a cup of coffee with my … Continue reading

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Torn…

Okay, let’s face it… I’m “old”… not that 45 is really old old… but maybe old fashioned is a better phrase.  I still would much rather use command line to do my work at work rather than the shiny pointy … Continue reading

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It’s all about attitude…

I got this in an email from a good friend (thanks Aunt Vicki)… and it was very much needed this morning… Attitude There once was a woman who woke up one morning, looked in the mirror, and noticed she had … Continue reading

The little things… cutting the grass in bare feet

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Okay… let me start out saying that… every time I look at my feet, I hear my yoga instructor saying… toes spread brightly… and that is just what sticks in my head.  Toes are not USUALLY at this angle… honest…

Now…

When I was a kid, we had a huge back yard… I cut the back yard.  I never cut no-mans-land (this skinny stretch of yard that had rose bushes and sweet-pea vines growing out into it… and rocks strategically placed for looks but not for mowing…so, I cut the big back yard.  There were things to cut around (lots of flower beds… a big stone wishing well… dogwood trees, crabapple trees, lilac bushes… it is a wonderful yard) but it was where I learned to love to cut the grass.  I still love to cut the grass… although usually it gets cut during the week when I’m at work.

Today, it was grass cutting time…

I usually have to wear socks and shoes to cut the grass because it is usually deep enough grass to hide the ant hills.  And the first trip through the yard this morning, I did just that.  But it was deep grass today, and wet, and the mower wheels where set deep… so I cut it twice.  The second time, the grass was short enough so I cut it in bare feet… It was wonderful…. I love being able to go bare feet.  It is usually too hot here to spend a lot of time bare feet outside… you get blisters from the sidewalk and the driveway let alone the road… but the grass was cool and smooshy and tickled and felt marvleous…

It was worth sweating my hair drippy… it was a great morning

Third Day of the 4 day weekend…

Wow… I so totallyhate metylprednisolone… eeesh.

I took the first day’s pills… all SIX of them.  And they made me goofier than I normally am… they made me jittery and high… don’t like them… So I opted to not take day 2…. I can’t do this.  Do people really rely on these to feel better?  I hope I never have to… You have my respect, my awe, and my sincere condolences.

Yesterday’s walk was shorter than usual (only about 9 miles) but it was wonderful.  I signed up this week to do the half marathon again.  I think I will do better this year.  I don’t know if I will beat my time, but I’m determined that I won’t want to absolutely die by the time I hit the capital building.  I think our weekly long walks will help… I think we need to add some distance to even what we are walking.  I am going to dig up google maps to see what we can do and not kill ourselves. I can do this… I have to keep trying because I have to prove to myself that I can do this.  I would love to try to raise money for charity… but I don’t want the chosen 26.

Yesterday was Squirrel’s birthday (early) party.  She was so happy… she has wanted a party so much.  This year she set her sights realistically and we gave her her party… a TEN hour party… but the smile (and the pictures) are SO worth it.  I was worried about spending a fortune… but it wasn’t so bad… Pizza… candy… ice cream cake (the ice cream cake was killer) and now she is sleeping off the party.  Between her smiles and laughter and his laughter on his Japanese game… yesterday couldn’t have been more perfect.

Last night Bear’s oldest called.  She hadn’t called much since she moved back home and she called with less than great news.  her mom is in ICU with way way low blood count and doctors not knowing what is going on.  I’m worried.  I know that I’m not anyone’s favorite person in the world… but I’m really worried.   I wish I could send her a card.  She used to really like cards…   I wish I could text her or someone let her know that I’m thinking about her.

Today?  This morning it is a headachey morning, but this feels like sinus so I’m not too worried.  I have to check on squirrel… I’m really starting to worry about the swelling she has going on on her face.  Pick up laptop from the laptop doctor (actually… replacement one… they junked out the other one and are replacing it with something they pick… that kind of ticks me off but I get it back.)

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The Little Things #10… On being Exactly Where You Are Supposed to Be

You have heard of those Ah-ha moments, right?  The times when you realize that someone or something has been looking out for you… that you THINK you know what is best for you but maybe you are wrong… that sometimes … Continue reading

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30 things about my invisble illness

30 Things About My Invisible Illness You May Not Know 1. The illness I live with is:rheumatoid arthritis 2. I was diagnosed with it in the year:2009 3. But I had symptoms since:2008 (at least… and that is what the … Continue reading

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Trying to come to terms with methotrexate…

I hate Fridays.  I have always enjoyed Fridays… we live less than 2 miles by road… probably less than a mile as the crow flies from the Baseball park… Fridays, when they have a home game they have fireworks after … Continue reading

It’s the Little Things #3 Free Books

Okay okay… in some cases not totally free (like the library where you have to take them back) but there are free books if you look for them and there are more free books now than ever before!

Don’t get me wrong… I have been spending an inordinate amount of time at the library lately… Tuesday is my go to the library day.  I haul a half ton of stuff back every week and get a new half ton out.  I love the fact that I can listen to music on my work computer that I may not otherwise listen to and I can get a taste of new authors that I might not read otherwise too.  AND they have books on CD… Hello drive time.

Yesterday I went hunting a book for the book club at work.  I had already found that the Kindle was available for computer and for ipod touch, ipad (the big giant ipod touch…), soon to be available for the android… and thought that maybe I could find the book on Amazon… no dice.  I can find the print version but not the electronic version… crap.

Well… okay… maybe I can just compare print version prices between Amazon and Barnes and Noble… hop on over to bn.com and see what I can find… HOLY COW… I can find the nook software available for the computer and the ipod or ipad.  Still can’t find the book I’m after electronically… but wow….

I CAN find free electronic books.  AND the nook… if you hop over to the bn.com site, you can see that for five weeks (of which we are already in week 3) you can go into the store with your nook enabled device and say… Hey Mr/Ms BN person… I downloaded the nook onto my device and I would like a certificate for the free book… and poof… free book.  The local Barnes and Nobel even had a few extra copies of last week’s certificate so I got TWO free books last night.

Are they books I would have chosen?  Probably not.  Are they books I will read?  Yeah… both of them seem to be books that are going to be interesting and that I will read.

It did more than just give me some new reading options, though… it gave me new options in general.  I wanted to be able to read books on something like a Kindle but I don’t have Oprah sending me stuff like she gives her audience on the “Look I SO TOTALLY LOVE these things” shows… not only can I not justify flying to Chicago on the off chance It would be that day on the off chance I could get in… on the off chance that… whatever… I couldn’t really justify spending the money on a book reader, let alone on multiple book readers (because the Amazon book reader won’t read the books from Barnes and Nobel and those can neither one rad the Sony format).  Now, with the FREE reader software that I can install on whatever I have that I’m going to have with me anyway (except, so far, my phone, but that is coming… only drawback there… battery life… and I like my android WAY too much to opt for an iPhone) and I can read the heaviest book by pulling it out of my pocket no matter where I am or no matter what is going on… or out of my purse (yes, mom, I’ve resorted to carrying a purse as often as not).

It also means that I can read, and take notes on the books I’m reading, or whatever, on the same device and I don’t have to carry any more than I absolutely have to carry.  How cool is that.

Free software.  Free books. Freedom from worrying about ripping pages or anything like that…. all I have to worry about is loosing my device or it getting wet but I worry about that anyway.  How totally cool is free books?

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Full bars

150 to 160 calories of fruit and puffed wheat or puffed rice plus 8 ounces of water thirty minutes before a meal so you eat less at the meal… how is that different than a bowl of cereal, other than … Continue reading