Category Archives: motivation

Being The Change

I’ve apparently made it my defacto purpose in life to spread Mary Sunshine.  I’m not sure how it happened, and it has started to make me the butt of jokes with some people I know, but it is what it is.

It started small.

I started out posting facts about epilepsy.  I started this because I realized how much no information there was, and how much misinformation there was… and is… surrounding epilepsy.   And because my little girl started having seizures and was diagnosed with epilepsy.  It turned out to be the first official flag I started waving.

Then I started out just posting blue mountain cards on facebook… you know… they have the “this day in history” kind of cards and I started out just posting those when I remembered.  I have a blue mountain account and I’m NOT afraid to use it… apparently… so I used it. Little steps… but it apparently made people smile.

Then I started seeing poetry (sometimes in English, some times in French… some times in Portuguese… ) and motivational pictures or funny pictures.  Mostly these talk to me in some way, so I started to save them off to my computer and made them into a screen saver (just tinkering with the photo show screen saver that comes with Windows).  Then I figured that if they talked to me, maybe other people would like them too… people who didn’t find them on their own… so I started to just “share” them from the people who had posted them.

I have a thing about copyrighted material, and if I share them, the people who posted them get to keep “credit”…

and people started to really like them.  They started to “like” my links/reposts.  Sometimes they have commented on the fact that they like them.

I guess in my own little way, I’m being part of the change I would love to see in the world.  I’m bring just a little smile to people all over the world.  I’m bring a little sunshine into some people’s days that might not have that sunshine otherwise.

Mostly, people still like the things I post from games giving things away (which sometimes is rather demoralizing for me… it seems to be a lot about what people can get off of other people rather than how they can help other people) but I’m starting to get the idea that I can do this and that I can make a difference in the world… one person, one smile at a time…

Happy Sunday…

 

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It’s All About the Attitude

I’ve been told that I’m the happiest person that people know.  I’m always chipper.  I’m always in a good mood.  I keep thinking about that comment.  I keep thinking about the way I hear other people talking.  I keep thinking … Continue reading

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Rain… YAY… Oy Vei

Woke up this morning to the wonderful music of rain on the side of the house.  It had been so long (months) since we had any really appreciable rain and we have needed it so desperately.  We currently are looking … Continue reading

A New Tomorrow

At the risk of sounding like someone added something REALLY good to my Methotrexate I’m starting to think that there may be some very interesting mixed blessings that came along with my new reality.

Dealing with all of the interesting-ness that has been my life and the lives of my family… it has me started thinking more and more about what I love to do, what I have always loved to do… what I have always been very discouraged from doing. What I have been made fun of for doing.  What I’ve been encouraged by teachers to do but only teachers (who obviously know NOTHING anyway or they wouldn’t be teaching… except the one who encouraged me the most is actually following his dream too… just also putting food on the table at the same time)…

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The Phoenix lives for 500 to 1000 years depending on what legend you read. Once that time is over, it builds its own funeral pyre, throws itself into the flames and as it dies, it is reborn anew, rising from the ashes to live another 500 to 1000 years.

Now… I think a lot about me, and who I am and what I want my kids to know they can do and how to live my dreams.  I feel like I have been through several lifetimes, if the 1000 years is only figurative.

I think my RA/Sjögren’s/Raynauds diagnoses helped me build my latest pyre.  The fire is taking a pretty good chunk of time, but slowly I’m climbing out of the ashes and learning to be me.  I’m learning that I may really have talent.  I’m learning that you are never too old to learn to take wing and fly.  I’m learning that dreams are dreams and they may evolve, they make slumber, but they are always there.

Good Things That Came From The Wildfires

So much destruction, fear and heartache happening in the Austin area.  How can anything good come from it?

Because of ongoing discussions about the fires ongoing on Facebook, I’ve made a couple new friends.  I’ve found out other people in my area who have similar situations to mine (go go RA… no really GO, GO… GO, now) who are walking similar walks of their very own.

Going a little further down the rabbit trail, because I have found out that there are people like me in the area (no I’m not dumb, I knew they were there, but I didn’t know where and didn’t have a concrete picture of them in my head) I also went on a walk down their Facebook status’s.  And because of that (no no really I’m not ADD, look, shiny chicken) I found Redefine Girly.  There really are people out there like me.

It has been a running joke with my daughter (maybe not joke… something) that any time we go into McDonalds and they have a choice of toys in the Happy Meals… I better not be around when someone orders a Happy Meal… because they ALWAYS ALWAYS ALWAYS ask if you want a girl toy or a boy toy…. GAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHH… unless the toy is anatomically correct, you can’t say it is either BOY or GIRL… it is a Hot Wheels Car or a My Pretty Pony… there is nothing inherently girl or boy in any freaking toy.

Amandya gets the deer in headlights look when she hears it and tries to steer me clear of the conversation.

I don’t know if she realizes it or not but what I have always tried to instill in my kids by telling them “there are no girl toys, there are no boy toys, there are toys” is that I have been trying to teach them (and I think I have been somewhat successful) that TOYS is only a euphemism for life.  There are no girl jobs/boy jobs.  There is no career that you cannot do because of gender.  You can read if you are a boy.  You can play Soccer (or Hockey) goalie if you are a girl.

Life is going to put the glass ceilings in place fast enough.  I have always tried to make them understand that they can do what they want to do an society might no “like” it, but you know what, society is so boogered up in so many ways anyway that it really doesn’t matter what they like.  Follow your heart.

We have come to the place where none of us are going to be singers.  Not because it is a gender thing, it is PURELY a talent thing.  But we sing from our hearts and despite being off key.

There are people out there like me.  And I am AWESOME!!!

More Thinking About Perspective

Perspective

When you find out that you have (or someone you love deeply has) a chronic condition, whatever that chronic condition is, it is kind of like suddenly finding yourself lost in a lonely little rowboat in the middle of a dense fog bank.

You may not be alone.  You may have the best support system around you that you could ever dream of having, but finding out your new reality hits you so hard that you suddenly find yourself lost.

The sun may burn off the fog in hours, days, or months.  The wind may fill your sails and push you out of the fog.  It may roll back in later, but it will likely not be as thick or as frightening the next time you find yourself feeling lost.

If you are the one in the fog, reach out to the light houses along your way, find your candle on the water to help you find your way.  If you have been in the fog… you can be someone’s lighthouse, even if it is only virtually (on line… on facebook or other social networking site, or in another medium).  If you love someone who finds themselves being lost… understand that the fog can roll in suddenly and overwhelm their little boat… throw them a rope so they can feel safe.  Knowing the rope is there, knowing the light house is there, knowing that there is anyone who gets it (understands, has been there, gives a dam) is sometimes the most important thing in the world.

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That’s About The Size, Where You Put Your Eyes

Been humming the old Sesame Street song, That’s About The Size Of It… Here are the lyrics Oh everything comes in its own special size I guess it can be measured by where you put your eyes It looks big … Continue reading

It’s one of those… weeks…

“Yes, risk taking is inherently failure-prone. Otherwise, it would be called sure-thing-taking.” (Tim McMahon)

I have been poked to step out of myself and take on the bigger world.

I have watched it rain (YAY RAIN)

I have realized that I have amazing kids

I understand that even hypochondriacs get sick

It isn’t what you look at but how you see what you look at

“Wisdom doesn’t necessarily come with age. Sometimes age just shows up all by itself.” (Tom Wilson)

I can’t change tomorrow.  I can’t change yesterday.  I can only try really really hard to make it through today…

 

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Making a Difference

Okay… Okay… I’m listening.  Honest… I am. Today I got an email from YummyMummy Club, my Epilepsy article is being published in this month’s issue of the Yummy Mummy Club Newsletter… my article is Epilepsy Doesn’t Just Happen to Other … Continue reading

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Finding Yourself

Suffice it to say, I’m not your ‘typical’ 40 something.  I was sitting listening to the Cars soundtrack and decided that one song was talking to me… a lot… and the lyrics have nothing at all to do with finding … Continue reading