Category Archives: rheumatoid arthritis

RA Guy post

This morning I was clued in to an article written by RA guy when my facebook went off…

The article is here

It is a really good article and, while more directed to males than females (which I have to admit thinking about it is unusual) that showed up in a UK publication.  It made me think.  It made me think… about what it means to be male… about what it means to be strong… about what it means to have RA.

I try really hard to hide that I have RA.  I work with people not much more than half my age, as a whole and I don’t want to appear to be less than a person.

I work with someone who has back problems who is 5 years older than I am and who 1. often milks the condition and 2. thinks that the world owes him something because he bothers to show up for work even when he has an owie… I don’t want to come off as less than I am or as feeling like I’m owed something just because I hurt.

And I’m not male.

It has to be really hard to be a male with RA in a world that expects so much of you

RA Guy… my hat’s off to you… awesome article

i have arthritis, help me

This was, apparently, one of the top searches that landed someone on my blog…

Seeing that, it got me thinking… Now that I’m a sage old veteran of hearing that news (Has it really been almost 2 months already).  I don’t think that having made it through this far, even if I had it a year before I was diagnosed, makes me much of an expert, but I can SO relate to the sentiment of the search.

I had been having aches and pains when I finally got the gumpshun to go to the doctor (I guess my first piece of advice if you have made that kind of a search is… go see the doctor… don’t try to go it alone… don’t guess.  If you have ANY way to get to the doctor… go… they know things that help).  My PCP… or the stand in for my PCP since SHE was out on maternity leave and wasn’t back in the office regularly yet… made concerned noises at my lumps and bumps and swelling and bruised colors… and sent me for blood work. 

“It will take about 48 hours to come back”

yeah… the next afternoon I was sitting at my desk at work when the phone rang… it was the doctor’s office (I have them programmed into my cell phone so they show up as Doctor… not a great omen).  Sitting at your desk alone with dozens of people less than 3 feet away… and lots of people in and out of your cube farm is not the place to have the nurse tell you that you have Rheumatoid Arthritis.   Not being able to really talk to anyone when you find out isn’t great either.  They gave me the name and numbers of In Network Rheumatologist I should call.

I don’t remember much about the rest of that day… but I do remember that the sentiment expressed in the search and in the subject of this entry was what was running through and through and through my mind…. I have arthritis (not only arthritis, I have Rheumatoid Arthritis… yes, there is a difference in kinds), help me.

You are not alone.

I’m guessing that phrase probably ran through all of our minds (or most of us anyway) at some point.

Read books.  If you can find one at the library, read it, if you have to break down and buy one at the book store… it is agreat investment.  Don’t stress over some of the things you read on the internet.  No, there are no miracle cures.  There are no cures… there are only currenly treatments.  They can be quicker to work or they can take a while to work…

Find someone to talk to.  If you can’t find anyone “real” to talk to… reach out to support groups or reach our to one of us who blog… we are not necessarily the font of all knowledge, but we are going through what you are going through and we can at least understand what you are going through… sometimes that is really what you need… that and someone to tell you that it is okay to buy a dog brush if it is designed better for your hands and use it on yourself (I bought one at target yesterday because it looked easier to use, and it is…).

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I must be crazy

Okay… so, reality is starting to set in.  In two weeks, I go participate in my first half marathon… I must be crazy to think I can do this.  As I sit on the bed wrapped in my heavy  fuzzy … Continue reading

RA and Keyboarding and Mousing (is mousing a word?) article

Was out randomly looking at the internet this morning (I LOVE days off during times when I can actually quietly just surf) and I found a really cool article on the OndIndia website dealing with whether RA impacts people’s ability to type and mouse.

I was a little surprised at the results… or maybe at the way the results were couched…

Touch typing made a positive impact on typing speed for people with RA (pretty sure touch typing helps people without RA, too… .) but that older people with RA had poor-er mousing skills and speed than younger people.  Somehow that isn’t (as an “older” person) come as a great surprise to me.  I’m not sure that the difference is in age or in RA.  I am leaning a bit more towards the age of the person.  Anecdotal evidence suggests that older people without RA don’t do so great mousing either… it is, I think, more of a cultural difference between “older” and “younger” or maybe just a decrease in  response time overall…

I would be interested in reading the whole set of findings…

per the article…

“The findings of the study have been published in the February issue of Arthritis Care and Research, a journal published by Wiley-Blackwell on behalf of the American College of Rheumatology. (ANI)”

I guess I realized that RA hasn’t slowed me down any typing… maybe in duration I can tolerate some days, but not in speed… It was suggested that I didn’t actually hurt the way I thought I hurt (before I was diagnosed) but that I was just overusing my hands and wrists (and feet and ankels and…. ) but when the blood work doesn’t lie, that argument went out the window.  Actually, I have found that typing (and crocheting) makes my hands and even wrists feel looser and less stiff if I ease into it in the morning…

It is good to know, though, that “older workers” aren’t being found to be any less capable than anyone else.

Another Dr Appt with Rheumy

It is a Back to the Doctor Monday.  Funny… gives “that time of the month” a whole NEW connotation…

Looks like (surpise surprise) I have inflamation in my body (according to my lab work).  I kind of figured that out without actually having to go through the blood work.  My toes, my ankles, my knees, my wrists and my fingers… yeah… pretty sure the bloodwork is right.

Looks like, according to Dr, pill form of MTX isn’t working the way she was hoping. If it doesn’t start helping more (more than… none on a good day… or negative on a ‘normal’ day???), I will have to start on the injectable form… which the insurance won’t pay for if I buy it from the pharmacy… I have to go to the office and have them inject me and then it will be covered after I meet my deductable….

I guess that means I will be in the Dr office every week rather than “just” once every 5 or 6 weeks unless the 6 pills or 8 pills start to do something.

In the mean time, I’m back on predisone… 5mg a day… I’m kind of glad… that will help me get through the race and deal with the swelling and the pain a little better.

I’m trying really hard to stay posotive, but you know… it’s hard.  Knowing that I’m costing so much right now… and that it isn’t likely to get better (did I mention that my HSA card didn’t actually WORK and I had to put the dr appointment on credit card until I can get it all straightened out?).  I am more swelled and achy than I was 6 weeks ago.

I’m just overall sad today… feeling very “poor me”… and to add insult to injury… I gained 5 pounds…

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Strange Saturday

Well… last night I upped my MTX to 6.   Not sure if it will do any good… starting to have my doubts… but something will… I have to have faith. Got up this morning queezy… no great big shock there… … Continue reading

It’s a Rainbow day…

Okay, well, maybe  not entirely.  Fact is, it is 76 degrees outside today and a beautiful sunny day (I’m pretty sure that winter might be over here)… and I even went for a walk at lunch time to the capital building and watched the squirrels play in the live-oak trees in the sunshine…

The rainbow part dawned on me as I laid out my pills for the day this morning…

Blue and white and beige and tan and yellow and cream and orange… all in a little pile… all very colorful…

Makes me think… it is all in how I look at this… RA has added colors to my day… and it helps me notice parts of my body that I would ordinarily overlook… like the spot on the outside of my right heel and the inside of my left heel that are about the size of a half dollar that are poking at me to try to get me to slow my life down…

RA is teaching me to slow down and pay attention to ALL of the colors in life…

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The End of a Long Week

It was what I assume is a semi-flare week… I hurt several days really badly… MTX didn’t agree with me this week at all (spent yesterday puking and sleeping)… joy joy. My knuckle is still lumpy and bruised looking… and … Continue reading

Rheumatoid Arthritis Support Forum

I found a place where I think I will fit in… and it looks like a wonderfully warm and helpful place… Here is where you can find Rheumamisfits.  I like that being a misfit isn’t a bad thing.

I didn’t think that my “team” needed to include a support group… particularly if that group meant that I needed to leave my house and go to meetings where I didn’t feel like a fit in even worse than I usually don’t fit in… here I found a group of people who make me welcome and where I can stop in and visit when I feel like it… when I need to… when I find myself looking for support, an ear that understands… people who are willing to listen and understand.

I highly recommend this group as a place to start… ask questions… pour through the archives until you are comfortable talking.

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Working out in the EARLY morning

I’m BACK (kind of).  4:30 this morning I hit the road for an hour’s ‘walk/run’.  3.5 miles later… sweaty and feeling human again… I hit the front porch… 35 degrees Fahrenheit in a t-shirt and hoody… sweats… and my DS … Continue reading