Wow… there is something to be said for not starting to feel better… If you stay hurting and feeling like crap for the most part… you don’t notice so much when you have a day when you feel way worse. … Continue reading
Wow… the end of one of the longest weeks I can ever remember. It has been an adventure, and the beginning of an adventure… (and out of frustration and anger… another blog… this one, not surprisingly, on our epilepsy journey… it is new, and sparse right now, but I know what I need to do with it since there are very few blogs that I’ve been able to find on epilepsy like so many wonderful people have on RA… ).
Last night was week 2 on 8 pills of MTX. My knuckle bump seems to be staying down even after almost 2 weeks off of prednisone… so maybe maybe maybe it really is the MTX helping… it is apparently having an affect on my hair… my PCP asked me if that was what I was attributing the hair loss to.
thanks… I needed that… like I needed the rest of my week.. eesh…
I did get my lab results back from PCP… cholesterol is still a little high… don’t know how hight but a little high… so I need to watch my diet better. I wonder if the cholesterol is because (partly) of the diet I ate in preparation and recovery from the race… It is pager week… so I won’t be doing much in the way of distance work this week (at least not until Friday) but I need to get back to the gym starting Tuesday.
I signed up for a yoga class that the HR department at work is offering for $25… 12 weekly classes on Thursdays… I’m hoping that helps with my focus and stress level. Oddly, with all of the stretching I do when I run, my flexibility isn’t so bad… but this should help with that, as well.
Today is a learning and catching up kind of day. Supper is beef/pork soup day. A quick trip to the store will grab cabbage, potatoes and carrots to toss in with the other veggies and some barley… maybe a loaf of Italian bread (also known by the kids as “good bread”) will round out dinner. Maybe a batch or two of home made brownies too… yeah, I’m in THAT kind of mood. add to that doing research and catching up on reading everyone’s blogs to see where they are and that will make today a wrap.
Now… a cup of coffee… a hot bath… clean clothes and we are off…
Have a magical day!
I’m feeling sorry for myself this morning. I’m 99.9% sure the “better” I was feeling was attributed greatly to the prednisone.
this morning my ankles ache (not my toes… oddly enough… for which I am immensely grateful)
This morning I was clued in to an article written by RA guy when my facebook went off…
The article is here…
It is a really good article and, while more directed to males than females (which I have to admit thinking about it is unusual) that showed up in a UK publication. It made me think. It made me think… about what it means to be male… about what it means to be strong… about what it means to have RA.
I try really hard to hide that I have RA. I work with people not much more than half my age, as a whole and I don’t want to appear to be less than a person.
I work with someone who has back problems who is 5 years older than I am and who 1. often milks the condition and 2. thinks that the world owes him something because he bothers to show up for work even when he has an owie… I don’t want to come off as less than I am or as feeling like I’m owed something just because I hurt.
And I’m not male.
It has to be really hard to be a male with RA in a world that expects so much of you
RA Guy… my hat’s off to you… awesome article
So… all of the handy dandy literature says to remove stress… HOW do you do that? Yesterday I was peacefully (if a bit late because it was a bad day at work anyway) when the phone rang. It was a … Continue reading
Up and thinking that I really have to get ready for work and get the angle girl’s hair ready for Uniform Day (NJORTC). I have come to hate uniform days… they are days when I grit my teeth and tough out making her bun. Last year, I secretly actually looked forward to this… although it was wonderful to poke at her about it… this year I do it and it means so much to me to do it for her… but it is hard to do and many weeks it hurts…
Took my prednisone early so I can get the most out of the day.
I’m looking forward to being at the gym at lunch time.
I keep trying not to dwell on how the doctor thought the MTX would be helping more… and thinking that I just need to take this one day at a time, one dose at a time.
Had dreams last night about the fact that my blood work “said” I have inflammation in my system. My first thought was, well… duh!!! however I had dreams (nightmares?) about my heart and my liver and my lungs and my stomach (hey… maybe THAT is why I weigh what I do… from inflammation… not because I’m too fat) and that making weird lumps in weird places because the inflammation pushes the organs out. It’s funny (not really in a ha ha kind of way though) that the inflammation in my system might explain why I have been feeling the way I feel… and maybe taking prednisone isn’t such a bad thing if it takes that down just a bit until whatever meds gets this beast under control.
It is a Back to the Doctor Monday. Funny… gives “that time of the month” a whole NEW connotation…
Looks like (surpise surprise) I have inflamation in my body (according to my lab work). I kind of figured that out without actually having to go through the blood work. My toes, my ankles, my knees, my wrists and my fingers… yeah… pretty sure the bloodwork is right.
Looks like, according to Dr, pill form of MTX isn’t working the way she was hoping. If it doesn’t start helping more (more than… none on a good day… or negative on a ‘normal’ day???), I will have to start on the injectable form… which the insurance won’t pay for if I buy it from the pharmacy… I have to go to the office and have them inject me and then it will be covered after I meet my deductable….
I guess that means I will be in the Dr office every week rather than “just” once every 5 or 6 weeks unless the 6 pills or 8 pills start to do something.
In the mean time, I’m back on predisone… 5mg a day… I’m kind of glad… that will help me get through the race and deal with the swelling and the pain a little better.
I’m trying really hard to stay posotive, but you know… it’s hard. Knowing that I’m costing so much right now… and that it isn’t likely to get better (did I mention that my HSA card didn’t actually WORK and I had to put the dr appointment on credit card until I can get it all straightened out?). I am more swelled and achy than I was 6 weeks ago.
I’m just overall sad today… feeling very “poor me”… and to add insult to injury… I gained 5 pounds…
Well… last night I upped my MTX to 6. Not sure if it will do any good… starting to have my doubts… but something will… I have to have faith. Got up this morning queezy… no great big shock there… … Continue reading
Okay, well, maybe not entirely. Fact is, it is 76 degrees outside today and a beautiful sunny day (I’m pretty sure that winter might be over here)… and I even went for a walk at lunch time to the capital building and watched the squirrels play in the live-oak trees in the sunshine…
The rainbow part dawned on me as I laid out my pills for the day this morning…
Blue and white and beige and tan and yellow and cream and orange… all in a little pile… all very colorful…
Makes me think… it is all in how I look at this… RA has added colors to my day… and it helps me notice parts of my body that I would ordinarily overlook… like the spot on the outside of my right heel and the inside of my left heel that are about the size of a half dollar that are poking at me to try to get me to slow my life down…
RA is teaching me to slow down and pay attention to ALL of the colors in life…
Posted in Journalling, motivation, rheumatoid arthritis
Tagged point of view, rheumatoid arthritis
It was what I assume is a semi-flare week… I hurt several days really badly… MTX didn’t agree with me this week at all (spent yesterday puking and sleeping)… joy joy. My knuckle is still lumpy and bruised looking… and … Continue reading
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